After 20 years of continuous failed treatment in Poland, I have undergone 11 surgeries that didn’t bring any positive results. The last 2 of them made my condition even worse. I am desperate, as there is no chance for improving my condition in Poland. My last ( and very expensive ) hope is a complicated surgery in the USA. Please, help me to live without pain!
My name is Agnieszka. When one looks at my photos, they would not believe that I have been struggling to live with my condition since I was a child.Chronic pain is my everyday company. I use painkillers as my only help, but it is not a solution in a long run.It’s called fibrous dysplasia. In addition, I have a benign cancer in my left leg. Dysplasia is a rare skeletal disease in which the process of bone synthesis is disrupted by abnormally acting proteins. My bones, are deformed and break easily.I have undergone 11 surgeries.
My health got worse. A piece of my pelvis and acetabulum had been removed. The endoprosthesis had not been fixed properly. The procedure that is supposed to be used in the final stages of bone cancer had been carried out at the beginning instead…
I didn’t stop searching and finally found dr Feldman who accepted me as his potential patient in Paley Institute, West Palm Beach in Florida. This surgery is my greatest chance to live without pain. Now my situation is different, as I cannot afford to pay the costs that are extremely high.My disease had always ruined all the plans and dreams. As a little girl, I could not become independent and go everywhere I wanted and crutches became my closest companion. I was embarrassed, but it made me stronger, so now, even being so afraid of the surgery ahead me, I am standing tall to ask you for support. Only You can give me another chance to live without pain. Please, don’t let me lose my hope.