My niece Aurora was born on 1st march 2017 with Long-segment Hirschsprung's disease. After a very long operation resulting in her having a stoma and 5 long months in hospital this brave little girl finally went home fully dependant on TPN (Total parenteral nutrition) which is fed to her through a central line. This line has to be kept dry at all times therefore Bathing and swimming have so far been impossible for Aurora. However we have now found a company who can make a suit fully waterproof to enable her to go swimming These are made to measure and cost a fortune and may only fit for a short time.

My sons and their friends are going to do a sponsored non stop climb for 6 hours on the 18th of August to hopefully send Aurora swimming if anyone could help the boys would be very grateful

update- as we have hit our target the boys will continue to fundraise and any donations will be put into a charity account for any future equiment Aurora will need to enable her to lead as normal life as possible

thanks