Most of the people who know us and our boy ole will no he was born with a rare genetic condition which resulted in him having no vision whatsoever.
Hearing this news was devastating for me and mark we lost our little boy that day and all the things we had hoped for him and his future.
Time however goes on and we adjusted our lifes and realised just how much we gained hes amazing.
But then at the age of 6 he started having seizures and was diagnosed with epilepsy, when its bad he can have 8 to ten seizures a day when it's good maybe one, to watch your son have a seizure and to not be able to do anything but watch it take over his body is something you never get used to, when a seizure happens we never no if the same boy will come out of the seizure it chips a way at our boy and has left him with terrible anxiety, four years on about 10 different medicines God knows how many test and countless hospital visits were dealing with just one to two seizures a week which is the best news we've had for ages.
Tommorow he starts his autism assessment something that's been ongoing for a couple of years now every day is different some days hes willing to do what ever we ask somedays it meltdowns all day long sometimes its endless tears mine not oles but threw it all he slaps a smile on his face and he lives his life as much as he knows how. We would love to make this life abit easier for him by creating a safe place for him and turning his house in to his home somewhere he can be himself and live his best life I understand hes not dying or terminally I'll but hes a little boy in need and he off all people deserves nothing but the best he,s our angel.