We are a very rare community. There are currently only 42 families in the world with a family member affected with the CHAMP1 gene mutation. In the UK there are only 4 CHAMPS. We are on a mission to raise awareness of our rare community and rely on the support of family and friends. We need to get the word out there to the Rare Disease network. Our website is a point of contact for newly diagnosed families to reach out to the CHAMP community. We have running costs to enable the website to stay up and running. Some members of our community are hoping to use some of the funds to source materials that displays information on CHAMP1 for upcoming events.

Your support would allow us to continue doing these things. Please spread the word. If you can donate a CHAMP£1 and all your friends were to do the same we're sure we could reach our target.

Thank you for all your support!

www.champ1gene.com

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