Lexi is an amzing little girl who has beaten all the odds Her mum and dad waited many years for a diagnoses and the one they got brought relief but also dread of the years that may be stolen from ther prescious baby girl

Im raising money to help get mobility equipment for Lexi so she can feel the joy of independence of getting around on her own even while being blind.

Kif1a is a relatively new condition, a gene only known about since 2011 when the first individual was diagnosed and because of that it is still in the very early stages of research but funding is urgently needed to accelerate research leading to clinical trails to find a cure for Kif1a.