Two weeks before her 1st birthday wee Jessica was diagnosed with MPS 1 – Hurler Syndrome; a rare life limiting genetic disease which affects on average only 1 newborn baby in Scotland per year. Without a bone marrow transplant Jessica would not have survived the age of 2. In December 2016 Jessica underwent grueling chemotherapy and her family watched as doctors slowly shut off parts of her body in order to give her the life saving transplant. This was followed by almost a year living in Glasgow Children’s Hospital, turning family life upside down. Thankfully the transplant so far seems to have been a success although the effects of various medications and Jessica’s Hurler Syndrome has meant she has needed many hospital stays with countless trips to theatre and some time in intensive care. Sadly this might always be the case. Just now Jessica is doing well at home and her family are managing her many medications and hospital appointments. It’s not yet clear what the future holds for Jessica although it is certain she will need a level of care for the rest of her life. Despite everything Jessica is the happiest wee girl on the planet and her Mum, Dad and big brother wouldn’t change her for the world.