Jade's Bucket List

My niece Jade is 13 years old and has the Chronic lung condition Cystic Fibrosis. We are hoping with your help to allow my niece Jade do as many things on her Bucket List as possible whilst her lungs will allow her. Yes i said Bucket List!!!! no 13 year old should ever be thinking about this at such a young age. At a recent review my sister was told that at the rate of deterioration of Jade's lungs there is likely only a few years left in them. A double lung transplant may be an option but is full of risks and on considering the options my niece has decided with the support of the family to not have the transplant. My niece is one of the bravest little girls i know. She is a beautiful, intelligent, talented, just such a loving little girl and boy does she have ambitions. With your help we want to let Jade have experience in the areas she has interests in. The following are things Jade currently would like to try her hand at:

Driving Lessons - Jade has not stopped about driving lessons for the last year or so and felt she would not get the chance to do them. I will be looking for a Fiat 500 for her to do these in, her orders lol. This we can do for her!!

Jade would love to become a Vlogger, this is new to me lol, i had never heard of it. Jade would like to Educate people on Cystic Fibrosis and keep people up to date on what life is like for her and other people with this illness. She has a passion for make up and would love to share her progress with the world. To do this Jade would need a camera and stand. This can be used for the Vlogging of her illness, makeup her baking. All the skills this page will help her to learn. If i can help her achieve this then im one happy Auntie :-)

New York, LA or Florida: Jade would love to visit any of these destinations, we are unsure health wise if the hospital would allow such a long journey but we will of course find this out first. If she gets to New York she would love to go at Christmas and skate on the big outdoor ice rink and do some Xmas shopping.

Makeup & Beauty Course: Jade loves being creative with makeup, for such a young girl she is fantastic. She is not allowed to go out with lots on but loves sitting in the house trying out all the latest makeup styles. As you can imagine there is a lot of time spent in her hospital room so this gives her something to fill her time. Its like a beauty salon in the room at times as you'll see from some of her hospital pictures. She would love to learn Gel and Acrylic nails, whenever she is out with her befriender Sophie that's what they head off to get done. Old auntie Claire will benefit from her learning this this lol. I will pay her of course :-)

Special Effects Makeup: Jade has shown a keen interest in this work of Art, she talks of wanting to attend a college course for this but right now being so young we cant look at College however i feel we feel this is achievable some sort of training with the right contact in the Industry. If anyone has links to people in this area of work please contact me.

Bakery: Jade loves baking, she misses a lot of school with being in and out of Hospital but Home Economics is by far her favourite subject. She has such an eye for design and i know she will do well on a baking course. I know she will be amazing at baking, its all about the detail for our Jade :-)

Arianna Grande Concert; This is one of her missions lol, to see her in Glasgow if she comes here. I know its not a course granted but its something she would love to do and I am more than happy to help her get this wish if i can. Littlemix and Pink are another two Artists she loves and many many more.

We will update these as she advises the things she wishes to do.

Jade has a Port valve fitted in her chest that she receives her antibiotics into when she needs to go into hospital. This used to be 2 weeks every 3-4 months, however in the last few years its been between 2-3 weeks every 2 months and some times shes only out of hospital for a month and then back in. As you can imagine its not much fun for Jade or her mum being stuck in a hospital room as often. With Cystic Fibrosis Jade gets her own room as patients with Cystic Fibrosis are unable to mix as they can pass viruses to each other ( only patients with CF ) this means that over the years Jade has been unable to go to the playroom with other kids which is sad. Jade had a feeding tube fitted last March to fed her through the night as she was not growing enough, the tube is visible outside the body. Jade initially was very upset by this but has grown to accept it like everything else hat comes at her. Like i say shes the bravest girl i know. We were advised at the meeting that Jade needing this feeding tube replaced and they were going to fit a button.

UPDATE!!! Jade has this operation on Monday 25th March and is very pleased with the outcome. I have added new picture to the Gallery with her permission.

On behalf of my sister and I, thanks to all of you who are able to donate and help us achieve these goals for Jade. We will also be holding a Fundraiser disco night and ladies night ( to be arranged ) and a child friendly Singathon which will be held Saturday 15th June starting at the Clutha Bar Glasgow and on to the Glasgow Barrowlands, singing along the way and then entertainment by singers at the end of the walk. T-shirts can be bought for this event which we are calling Jade's Warriors, we would love your support :-) and soon and would be thrilled for you to join or support us.

Thanks so much :-)

Claire, hazel and all the family xxx