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Closed 18/05/2019
Weʼve raised £0 to help survivor's of Stevens Johnson Syndrome Scotland get life saving electronic medical ID wristbands
- Closed on Saturday, 18th May 2019
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Story
I am the founder of the only support group in Scotland that gives support including much needed life saving electronic wristbands to survivor's of Stevens johnson syndrome/Toxic epidermal necrosis.which is a potentially fatal condition.It is a allergic reaction to viral/bacterial infections or medicines.It has caused a lot of death through neglet and isolation and the lack of knowledge.Which I have tried for 9 years to give the knowledge and life saving electronic wristbands.I am a 9 times survivor,I have had it since 1986.I need to get funds to be able to buy survivors their SJS Scotland package which is knowledge of Stevens Johnson syndrome and no more isolation and electronic wristbands all for nothing.My door is always open to give support to survivor's and their loved one's.I am medically retired so I pay for all that is needed for SJS Scotland but I do need help for more survivors to receive their package.
Updates
1
- 5 years ago
Dame margaret faichney
5 years agoI am working daily to bring awareness to this life threatening horrific affliction, I have had SJS/TEN's 9 times and everyday I thank god for me waking up to a new day. SJS/TEN's has to be known all over as it is frightening that there is a lot of GP's,Consultant's,Paramedics and general public that has never heard of Stevens Johnson syndrome.Its man made so it can be stopped.if you need more knowledge why don't you read my website at www.stevensjohnsonsyndromescotland.com
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