Connor is now 13 and has lived with an extremely rare genetic conditional called Kleine Levin Syndrome since he was 8 years old. KLS only affects around 1000 people worldwide and there are only a hand-full of children in the UK diagnosed with this condition. Connor can sleep for weeks and even months when in episodes and in between episodes has memory loss and severe confusion. It is suspected that he also has Delayed Sleep Phase Disorder keeping him from sleeping through the nights when out of episodes and forcing him to sleep during the day. He is unable to keep up with school work and missing out on seeing his friends and going out with friends. We have been referred to a Specialist in London and although we have been once for a consultation, we are required to go back for further tests which could lead to medication to help Connor lead more of a normal life. KLS is incurable and very little is known about it. The DSPD is easier to treat but must be confirmed first with more tests. Connor has missed out on many Christmas Days, Birthdays, School trips, family holidays and other special occasions because of this condition and has little memory of growing up due to his long episodes and odd sleeping patterns. We desperately want to provide him with a better quality of life moving forward and to help him back to school to improve his chances of an education and to learn with his peers. Connor is a funny and bright teenager with a great sense of humour, who deals with this condition in a very grown up and mature way but get depressed and upset about losing large portions of his life. Please help us fund this vital trip to London and show him that there can be a life outside of his bedroom.