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Dave Wellard raised £1,810 from 33 supporters

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Closed 18/09/2018

0%
£1,810
raised of £2,000 target by 33 supporters

    Weʼve raised £1,810 to make a difference to the life of Josh and his mum Hannah, who are living with the effects of an undiagnosed syndrome that Josh was born with

    Funded on Tuesday, 18th September 2018

    Don't have time to donate right now?

    Story

    Our Grandson, Josh, is one of about 6,000 disabled British children born every year who have no diagnosis for their condition – they make up around 40 per cent of all disabled children. They are often referred to as SWAN children – suffering from Syndrome Without A Name.
    They may have significant learning difficulties, facial features such as low-set ears, heart conditions, vision problems and epilepsy. Many, like Josh, cannot walk, talk, or eat without assistance.

    Problems vary enormously from child to child, and SWAN is not an illness in its own right. Experts believe these conditions are genetic. But each case is thought to be the only one of its kind, which makes a proper diagnosis – and prognosis – incredibly difficult.

    Each is given the same utterly frustrating news by doctors: there is no way of knowing what the future may hold for their child. Treatment is a matter of fire-fighting, tackling problems as they arise. It is impossible to pre-empt difficulties because there are no previous cases to reference.

    For Hannah and Josh, normal life is planned around a seemingly endless round of medical appointments.

    Any funds raised will help to improve their quality of life between appointments.

    Keeping a smile on Josh's face is our main goal.

    Updates

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    Dave Wellard

    Updates appear here

      7 years ago

      Dave Wellard started crowdfunding

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      Page last updated on: 5/21/2018 18.03

      Supporters

      33

      • Eric Clarke

        Eric Clarke

        May 21, 2018

        Hope it went well and you recovered!

        £30.00

      • Tim Parrott

        Tim Parrott

        May 14, 2018

        Well done!!

      • Bruno Bohane

        Bruno Bohane

        May 11, 2018

        Nice one Dave...

        £20.00

      • Martin Williams

        Martin Williams

        May 11, 2018

        Good luck Dave!!

        £20.00

      • josh singleton

        josh singleton

        May 11, 2018

        Good luck Dave!

        £20.00

      • Mark Hilsdon

        Mark Hilsdon

        Oct 31, 2017

        Well done Dave, from all at RSK.

        £500.00

      • Tom Taylor

        Tom Taylor

        Oct 27, 2017

        Well done mate, hope your bums recovered...

        £20.00

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      Dave Wellard

      Dave Wellard

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