William's Story of Duchenne - How you can help...

William was diagnosed in January 2016 at the age of 3 with Duchenne Muscular Dystrophy (DMD). This was a diagnosis that was totally out of the blue and a complete shock to the whole family.

Duchenne Muscular Dystrophy is one of the most common fatal genetic disorders to affect children around the world. 1 in 3500 boys are affected by DMD. It is a devastating, progressive and currently incurable, muscle-wasting disease.

Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin, a protein that plays a key structural role in muscle fibre function. Boys with DMD do not produce dystrophin.

Life expectancy is improving as standards of care and knowledge about Duchenne in crease however, there is currently no cure for Duchenne.

We launched our sites https://defendingwilliamagainstduchenne.wordpress.com & https://www.facebook.com/DefendingWilliamagainstDuchenne/ in January 2018 to welcome the start of fundraising for William for now and in the future.

To make a donation to William’s fund either donate on this page or:

Cheques payable to 'Defending William Against Duchenne'

Bank transfers can be made to Account:83768740 S/C:20-05-73

Paypal: defendingwilliamagainstdmd@gmail.com

Contact mum Jo on 07779 595051 or defendingwilliamagainstdmd@gmail.com