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Eleanor Crane raised £325 from 16 supporters

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Closed 05/06/2019

0%
£325
raised of £1,500 target by 16 supporters

    Weʼve raised £325 to buy a dual controlled folding wheelchair for karl to get out and about , and be able to enjoy watching his young children grow up

    Banbury, UK
    Funded on Wednesday, 5th June 2019

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    Story

    , it is also knowI have started this crowdfunding page in the hope that i can raise enough money to give my partner a better life than he has right now , if i arrange days out with the kids we are now at a point where i have to leave him at home and show him pics and videos on fb so that he can see his kids having fun . In 2011karl started having seizures and was misdiagnosed for 3 years with syncope , he was pumped full of steroids and started developing other health issues recieving even more meds , causing huge weight gain . He lost his license and therefore lost his job driving the school buses. He developed chronic sciatica and started using crutches or sticks, problem being pain is one of the triggers for seizures so we ended up with a very heavy wheelchair as i was struggling to hold him when he started going into a seizure . This was very helpful but karl is too big now for me to be able to push him , manage kerbs etc .For the last 2 years karl has developed swelling and burning symptoms in his feet and hands, they go bright red and he cannot hold his walking sticks and struggles to get shoes on let alone walk , he was diagnosed with neuropathy but meds did not work and a neurologist said it was not neuropathy , last week he saw another specalist who said he has erythromalagia , its rare , its painful , its difficult to treat , there is no cure and it could get worse . It is also known as man on fire syndrome . Karl is very low in mood and isolated , if he gets out of the house his mood deteriorates very quickly as tbe pain is so intense , this will cause multiple seizures . We hope that if we can raise the money for a freedom chair karl can at the very least get some enjoyment going out with his family and not being in as much pain as he would be walking . This chair has an attendant control also so if he has had a seizure i can control it . It can manage kerbs and hills it is designed for his bigger frame . If you feel you could spare anything to help get karl mobile again we would be forever greatful x

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    Eleanor  Crane

    Updates appear here

      6 years ago

      Eleanor Crane started crowdfunding

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      Page last updated on: 12/8/2018 19.46

      Supporters

      16

      • Jennie

        Jennie

        Dec 8, 2018

        Give my best to Karl! I have EM too, and it is a very debilitating syndrome. All the love in the world to you guys.

        £10.00

      • Mark Tiddy

        Mark Tiddy

        Oct 1, 2018

        Good luck Karl. Get well soon 👍.

        £30.00

      • Claire Nicholson

        Claire Nicholson

        Sep 22, 2018

        Hope you raise what you need. Best wishes from Nicholsons

        £10.00

      • Beaty Pea

        Beaty Pea

        Sep 18, 2018

        Good luck

        £10.00

      • Tanya Hudson

        Tanya Hudson

        Sep 13, 2018

        Hope you get the donations you need

        £5.00

      • Peter Crane

        Peter Crane

        Sep 2, 2018

        Hope you get what you need x

        £10.00

      • Tim White

        Tim White

        Aug 30, 2018

        £20.00

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      About Crowdfunding
      About the fundraiser
      Eleanor  Crane

      Eleanor Crane

      Banbury, UK

      We need to raise £1500 so Karl can claw back some independence and get a dual controlled wheelchair . Erythromalalgia aka man on fire syndrome , seizures , sciatica , and anxiety attacks have left him stuck at home missing out on watching his kids at play . Thanku for reading x

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