Hi my name is Elijah Armes, i am 5 years old and i am in year one at school.
I enjoy my life to the full. I love singing, dancing and playing with my toys i especially love my megazord.
I have inherited a progressive neurological condition which causes muscle wastage from my mother, it is called CMT disease. My type of CMT is extremely rare as it comes from a genetic defect in the MORC2 gene. As CMT disease is a progressive neurological disability it will get worse over time.
At the minute affects my walking and balance i fall over alot so i have to wear splints to help with this. Im very lucky i cant get off the floor very well so my school have got me my own special chair. I get very tired as i have to physical work harder to achieve things and keep up with others. I use a wheelchair when i have to walk as i cannot walk far.
My type of CMT has caused me to have mild learning difficulties. I have attention defecit disorder and it took me a while to talk but i cope very well with this.
I may have a physical disability but i have a very positive outlook on life. I share my disability with my mummy i love her to bits i think she has passed on her positive attitude on to me. I never complain even though i have pain in my legs. I am always playing with my friends and join in every game. My favourite thing to do is dance i love to dance to the song shake it.
I always have a smile on my face. I love to make people laugh whether im always doing a silly joke or action. I think laughter is better than sadness.
I know in the future i may have to have surgery and other things done medically to help me. But i will cope how i always do with my amazingly positive attitude.
Are positive moto is i may have CMT but it dont have me!!
This fundraiser will go towards whatever mobility aids i require at the moment i need a wheelchair