Harry is a bright and determined young boy, which is fortunate, because he has a long battle ahead. Harry has a form of MND which is called SMA (Spinal Muscular atrophy) it is caused by genetic problems and until very recently, there was no treatment. Now there is a new drug in America, called Spinraza, which offers Harry and others like him some hope, by mimicking his missing gene. Harry will require the administration of the drug every 4 months and this must be done in America, by an operation which places the drug directly on his spine. Harry is blessed with a fantastic family who are tireless in their pursuit to help for him. We are trying to help Harry to continue his treatment in America.

In order to raise some money we will be hosting a Golf day at Essendon Golf Club on Tuesday 25th June. Please let us know if u can make it and if you cant feel free to make a donation.