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Closed 30/09/2019

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£145
raised of £4,000 target by 8 supporters

    Weʼve raised £145 to fund plagiocephaly helmet therapy for Ezra & Caspar

    Chelmsford, UK
    Funded on Monday, 30th September 2019

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    Story

    Ezra has complex needs and one of the treatments we have been recomended by his physio is plagiocephaly helmet therapy this is not avalible on the NHS and it cost £2025 we had an assesment on the 20th november and found out twin brother Caspar also needs the treatment

    What is plagiocephaly?

    Plagiocephaly is the medical term used to describe a common condition in which one side of an infant’s skull is significantly flatter than the other. It is often grouped under the better-known umbrella term of ‘flat head syndrome’ along with brachycephaly. Clinical reports estimate that the condition may affect as many as one in two infants.

    Babies are born with soft, impressionable skulls to aid passage through the birth canal and accommodate the rapid growth that occurs in the brain during the first few years of life. When infants spend a lot of time sleeping with their heads in the same position, a positional plagiocephaly can develop as a result of the external pressures being exerted on the skull.

    In most cases, the early signs of positional plagiocephaly are detected by parents or grandparents and the condition is reversed by repositioning the head away from the flattening as the baby plays, feeds and sleeps. Babies must always be placed on the back to sleep to minimise the risk of Sudden Infant Death Syndrome (SIDS).

    Some infants with a flattening will need more targeted intervention to release tight muscles (torticollis) and enable use of the full range of motion in the neck, and this can be achieved through physiotherapy or osteopathy.

    Repositioning will return the head to a more normal shape in roughly three out of four cases. Where this fails, a custom-moulded helmet can be used to achieve a complete correction in around 95 percent of cases.

    Helmet therapy for plagiocephaly

    Helmet therapy works by applying a gentle, continuous pressure to your baby’s developing skull throughout the day to promote even growth. This does not hurt, and once your baby gets used to wearing this new piece of clothing, it will not interfere with her everyday activities or ongoing development.

    The helmet is made from light foam with a semi flexible shell and moulded to an accurate photographic scan of your baby’s head shape. It is adjusted every so often to direct the growth into the required areas.

    If repositioning therapy has proven ineffective, a course of helmet therapy may be recommended starting at around four or five months of age. Treatment efficacy depends on the age of the infant and the severity of the plagiocephaly, but in most cases, the helmet must be worn for around five months in order to achieve the best possible results.

    Benefits of a plagiocephaly helmet

    Plagiocephaly helmets carry several benefits. First and foremost, they are the only treatment that has been clinically proven to help infants achieve a more symmetrical head shape and therefore more symmetrical facial features.

    Some people disagree with helmet therapy on the grounds that plagiocephaly is ‘only’ a cosmetic condition and should be left in nature’s hands. However, when one considers the pressure on individuals and particularly children in our society to blend in with the crowd, the need to look and feel ‘normal’ becomes more apparent, not for reasons of vanity but in the interests of healthy emotional and social development.

    Having undergone treatment, children will be able to style their hair as they wish without feeling the need to cover up. Growing up, they will be better placed to participate in sports, activities and employment for which protective headgear is required.

    It has even been speculated that helmet therapy may reduce the risk of developing certain disorders associated with craniofacial asymmetry later in life. For example, misalignment of the jaw, a common knock-on effect of plagiocephaly, can later go on to cause temporomandibular joint disorder (TMJ), which itself is associated with severe pain and speech disorders in its adult sufferers.

    In short, helmet treatment can help babies with plagiocephaly to grow into the happy, healthy children that they deserve to be.

    Thankyou for taking the time to read we will keep you all updated xx

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    Abbie Tompkins

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      6 years ago

      Abbie Tompkins started crowdfunding

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      Page last updated on: 12/18/2018 18.38

      Supporters

      8

      • Anonymous

        Anonymous

        Dec 18, 2018

        £5.00

      • Hatfield Peverel Nursery

        Hatfield Peverel Nursery

        Dec 12, 2018

        Money raised at Hatfield Peverel Nursery Christmas jumper day.

        £30.00

      • Dad & Chel

        Dad & Chel

        Dec 4, 2018

        Good luck to both of my lovely grandchildren .xx

        £20.00

      • Neilx

        Neilx

        Nov 22, 2018

        All the best to you all! xx

      • Emma Sutton

        Emma Sutton

        Nov 20, 2018

        Good luck. Xx

        £5.00

      • Gemma jerwood

        Gemma jerwood

        Oct 22, 2018

        All the best to all of you hoping you can get what you need xx

        £5.00

      • Kirsty Sawyer

        Kirsty Sawyer

        Oct 3, 2018

        Sorry it’s not more - I’ll donate again if you still need funds next payday. Wishing you all the best, love you all loads xx

        £10.00

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      About the fundraiser
      Abbie Tompkins

      Abbie Tompkins

      Chelmsford, UK

      Helmet therapy, or the use of a cranial orthosis, is a type of treatment prescribed for infants to help correct the baby's skull shape. Helmets work by directing growth from the flat spot, but they must be worn during the time when the skull and the brain is actively growing.

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