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Jenny Croce raised £1,275 from 70 supporters
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Closed 29/05/2017
Weʼve raised £1,275 to To help support and possibly fund a cure for 3 year Florence on her journey with the life limiting condition Gm1.
- Funded on Monday, 29th May 2017
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Story
This Is for three year old Florence. She was diagnosed with a rare life limiting condition called late infantile gangliosidosis otherwise known as Gm1. It is a genetic condition which has been inherited. It's a really tough diagnosis to come to terms with. It affects her muscles which means she is likely to loose the ability to walk, talk and swallow. It is also life limiting. We've been told that she will most likely not live past the age of 10. These next 2 years are crucial as it's regressive and she will start going down hill. I believe in miracles and there is an amazing charity in America called the Gm1 foundation. They are raising money for human trials to start at the end of this year.
I am raising money to support Florence in this journey and to help us pay for extra holistic treatments. Also for any equipment she may need. Also a percentage will go to the charity in America to support these trials and maybe even get Florence there if she is lucky enough to get a place on the trial.
Any amount of money counts. We are doing various charity events to try and raise awareness too for Florence and all the other children suffering. It really is a devastating condition. But with your help Florence has a good chance of beating it. We've got to try anything we can and support her in every way possible.
Thank you for taking the time to read and donate. It really does mean so much. The amount of support we've received has been heart warming and has got me through on the darkest of days.
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Supporters
70
Karen mackinnon
May 29, 2017
£5.00
Maya Sankey-Black
May 29, 2017
Was a pleasure to run for such a great cause! Xx
£20.00
Gemma Scotney
May 29, 2017
From the Scotney Clan:Erika: My 20p coins all for Florence xxGreta: Rainbow coins from me xAnd Grandma Jean xx
Marion Gough
May 29, 2017
Well done Jenny and all who ran with you, my cousin Gemma too. Good luck with funding for dear little Florence
£10.00
Michael Beardsley
May 28, 2017
Well done on completing Amy and a great cause, love Nilla x
£5.00
Anonymous
May 27, 2017
Good Luck Gemma and all Florences friends and family tomorrow, love Jane, Drew and Esme x
Anonymous
May 27, 2017
From Gemma's Uncle Kenny and Aunty Anne, hope this helps support Florence on her journey x
£25.00
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