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John Rainsbury raised £22,502 from 455 supporters

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Closed 28/02/2020

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£22,502
raised of £100,000 target by 455 supporters

    Weʼve raised £22,502 to fight childhood brain tumours in memory of our wonderful son, Will.

    Funded on Friday, 28th February 2020

    Don't have time to donate right now?

    Story

    Our beautiful little boy Will was an adventurous and cheeky 6 year old, full of beans and with a real love for life. Sadly, we recently lost him following a 9 month battle with a particularly aggressive type of Medulloblastoma, a childhood Brain Tumour.

    Medulloblastoma is the most common high grade childhood tumour, accounting for 15-20% of all childhood brain tumours. Whilst being caught early, Will's tumour was identified as having high risk and fast growing genetics (Group 3) and had already spread through his cerebrospinal fluid coating parts of both the brain and spinal cord.

    Will's surgery was a great success, he fully physically recovered (playing football on the wards!) and had access to the established 'Gold Standard' Radiotherapy and Chemotherapy treatment. Despite all of this, Will relapsed during the end of his treatment and quickly succumbed to its aggressive progression within a month of the relapse.

    With hindsight and in light of very recent advances in genetic understanding, it is clear the 'Gold Standard' treatment was unlikely to be successful in curing a Group 3 variety that had already spread. The 'Gold Standard' is an under researched, 30 year protocol that has not developed significantly over that time. New advances in genetics are confirming its ineffectiveness in fighting the most aggressive and devastating types of Medulloblastoma such as WIll's.

    We are raising money to:

    - Fund research into more effective primary treatments for the most aggressive varieties

    - Support other families fighting this savage disease

    - Push for change in primary cancer care methods, targeting specific genetic varieties and refocus towards bespoke treatment and innovation rather than protocol and dogma.

    We fought really hard to save Will and whilst we lost him, perhaps we can be a force for good and help other families to save their children.

    Follow us at https://www.facebook.com/Littlehero.org.uk/

    Updates

    3

    • John Rainsbury5 years ago
      John Rainsbury

      John Rainsbury

      5 years ago

      Hi, Great news, now that Little Hero is a registered charity we can now claim gift aid from HMRC on donations. Would you please complete a gift aid declaration using the attached link and this will add an additional 25% in tax relief to the donations you have already made! https://www.surveymonkey.co.uk/r/YT8JSLW

      Share this update to help us raise more

    • John Rainsbury5 years ago
      John Rainsbury

      John Rainsbury

      5 years ago

      Thank you to all who have been kind enough to donate so far. We have been inspired by your response and have lots of events planned: Bristol 10k- 5th May Three Peaks- 1st June 5k mid race Downs- 29th June Break the cycle Bristol- 30th June Bristol Tough Mudder- 5th July Bristol-Paris cycle- 8th-12th Aug Cirencester Tough Mudder- 18th Aug Medoc Marathon- 7th Sept Bristol half marathon- 15th Sept Sodbury Slog- 10th Nov Birthday Auction- Nov tbc Please reach out if you would like to join us at an events or continue to directly donate.

      Share this update to help us raise more

    • John Rainsbury5 years ago
      John Rainsbury

      John Rainsbury

      5 years ago
      Update from the Page owner

      Share this update to help us raise more

    5 years ago

    John Rainsbury started crowdfunding

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    Page last updated on: 12/7/2019 20.33

    Supporters

    455

    • Bristol bears supporter

      Bristol bears supporter

      Dec 7, 2019

      We didnt have any change at Ashton Gate today and felt really awful so we came home and donated instead. Wishing you lots of fundraising success for your very important cause .

    • Katherine Russell

      Katherine Russell

      Dec 2, 2019

      My daughter had a tumour, it was benign she/we are lucky. 10 days of hospitals and surgery I had just a glimpse of what you’ve been through and it was unbearable. Good luck with your fundraising. X

      £30.00

    • Anonymous

      Anonymous

      Nov 24, 2019

      £30.00

    • Anonymous

      Anonymous

      Nov 11, 2019

      Life is a gift.

    • Alex Harper

      Alex Harper

      Nov 9, 2019

      Love to you all.

      £50.00

    • Sarah Bushell

      Sarah Bushell

      Nov 8, 2019

      A little extra to support your amazing cause.

      £30.00

    • Anonymous

      Anonymous

      Nov 7, 2019

      Here’s hoping you soon reach your target.

      £30.00

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    John Rainsbury

    John Rainsbury

    https://www.facebook.com/Littlehero.org.uk/

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