Story

Paul Barron was diagnosed with Guillian Barre Syndrome (GBS) at the end of August 2007, after being flown home from his family holiday in France following an episode of paralysis whilst swimming in a lake.

He was initially admitted to Kettering General Hospital where was quickly deteriorated, becoming paralysed from the neck down over the course of 4 days. He was transferred to the John Radcliffe Hospital in Oxford for specialist neurological care where he spend the next 6.5 weeks.

The condition is difficult to diagnose, and this was complicated further by initial concerns about prolapsed vertebrae in his neck (later operated upon in July 2008!) and after a full MRI scan, lumber puncture and an electromyogram, he began treatment using immunoglobulin (IVIG - White Blood cells given intravenously).

GBS is a rare condition that affects 1 in 40,000 people each year, following a severe throat or bowel infection. The body's white blood cells, that have treated the infection, get confused and start to digest the myelin sheath that surrounds all the nerves in the body. It starts with the peripheral nervous system (hands, feet, legs arms) and then goes onto affect the central nervous system and can affect breathing and blood pressure. Some people are admitted to ICU, and have a tracheotomy to support their breathing. Paul avoided this even though the department had a bed ready for him 3 times! He had a feeding tube inserted, as the muscles in his throat gave up and he started to choke on his food.

After two courses of IVIG, and intensive physiotherapy, Paul learnt to stand and transfer his body weight, so was transferred to Beechwood rehabilitation unit in Wellingborough on 15th October 2007. He stayed there until the end of November, when he came home, with a wheelchair and being able to climb a few steps. He had a bedroom set up downstairs.

Progress continued slowly (the condition uses the catchphrase "Getting Better Slowly") and in February 2008, he started back at work, in the warehouse, for 3 mornings a week. By July he had gradually built up to full time warehouse work. He then had neck surgery and finally returned to home deliveries in October 2008.

Paul, Mel and friends are raising money to support the charity which offers support for families affected by the condition (patients usually need hospitalisation in specialist units, often a distance from their home and family), and also to enable further research into the condition. Paul was lucky, making a full recovery. Some people are not so lucky, being left with a range of paralysis and weakness and some die from the condition.

This is the 3rd event we have done, the 1st being a 5K run and two years ago, we cycled from London to Brighton. This is a much bigger challenge and the harsh winter has really affected our training! If you can sponsor us for any amount, we would be really grateful.

Thanks for reading - Cycle Team GBS (Paul Barron, Mel Barron, Chris Moreton, Lloyd Chettle, Richard Chettle, Richard Andrews, Andrew Daniel, Deb Lasky, Neill Boddington).

We'd also like to say a big thank you to all our supporters during the ride.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

Updates 3

Leg's still recovering from the ride. Most riders fell ill afterward too! Massive thanks to our support team and for everyone who has made donations. The overall total is looking like a GBS record and we may even get close to the £10K mark.

02/06/13 10:53

Not many training days left until the big ride! Thanks for all your support so far. We all have paper sponsor forms too if you want to donate but not online.

20/05/13 14:42

Thanks for helping us break our 1st �100.00. Your donations are much appreciated.

28/04/13 21:18

Raising money for

Guillain-Barre & Associated Inflammatory Neuropathies (gain)

Guillain-Barre & Associated Inflammatory Neuropathies (gain)

Charity Registration No. 1154843

GAIN supports those affected by GBS, CIDP and associated inflammatory neuropathies.The Charity provides information and support to sufferers and their families, raises awareness of the illnesses amongst medical professionals/ general public.Raises funds for cutting edge research into the illnesses

Donations 44

Donation by Ruby Barron on 05/06/13

£20.00

+ £5.00 Gift Aid

Well done great effort all round.

Donation by Anonymous on 05/06/13

£50.00

+ £12.50 Gift Aid

Inmem.png

Well done, great effort for a great cause

Donation by Tony Nelson on 01/06/13

heart.png

Good luck Mr Bod, careful not to mess up your hair.

Donation by Dave Jones on 31/05/13

£10.00

+ £2.50 Gift Aid

Donation by Anonymous on 31/05/13

£5.00

+ £1.25 Gift Aid

Hope the ride is going well, take our hats off to all of you ...well done!

Donation by Miranda Simms and family on 31/05/13

£20.00

+ £5.00 Gift Aid

Trophy.png

Nice one bruvver!

Donation by David Boddington on 31/05/13

£10.00

+ £2.50 Gift Aid

Well done Neil and team - go for it:-)

Donation by Mary Cheesbrough on 30/05/13

£10.00

+ £2.50 Gift Aid

Well done Mini - a huge achievement! xx

Donation by Suzie on 30/05/13

£10.00

+ £2.50 Gift Aid

Best of luck bro (Neill)!!

Donation by Anonymous on 29/05/13

£20.00

+ £5.00 Gift Aid

Hope it's going well! X

Donation by Emily on 29/05/13

£5.00

+ £1.25 Gift Aid

Donation by Margaret Price on 29/05/13

£30.00

+ £7.50 Gift Aid

Good luck guys!

Donation by G Foster on 28/05/13

£10.00

Donation by Monika Nicol on 28/05/13

£10.00

+ £2.50 Gift Aid

Good luck all of you - a worthy cause! Enjoy the stunning scenery - especially on the downward bits!!

Donation by Karen Mortimer on 27/05/13

£10.00

+ £2.50 Gift Aid

Donation by Jacqueline Noble on 26/05/13

£20.00

Inmem.png

Good luck Mel

Donation by Carol Lipscomb on 25/05/13

£10.00

+ £2.50 Gift Aid

Donation by Melanie Barron on 25/05/13

£125.00

Superman.png

Good luck everyone! Will be thinking of you all on Tuesday and Wednesday. Love mum Charles xx

Donation by Jean charles on 25/05/13

£50.00

+ £12.50 Gift Aid

Good luck!!

Donation by Polly Davies on 24/05/13

£15.00

+ £3.75 Gift Aid

Good luck from ESF!

Donation by Anonymous on 24/05/13

£30.00

+ £7.50 Gift Aid

cupcake.png

Good luck Mini !!

Donation by TOM BANHAM on 23/05/13

£10.00

Donation by Rob Johnson on 22/05/13

£10.00

Trophy.png

Good luck Neill

Donation by Krista & Neil Price on 21/05/13

£20.00

+ £5.00 Gift Aid

Donation by Norah Carroll on 20/05/13

£20.00

+ £5.00 Gift Aid

Donation summary

  • * Online donations£830.00
  • Offline donations£0.00
  • Text donations£15.00
  • Total raised£845.00
  • Gift Aid£166.25

* Charities pay a small fee for our service. Find out how much it is and what we do for it.