Thank you for visiting the Daniel Courtney Trust's online donation page
We set up our Charity, Making it better - the Daniel Courtney Trust, in August 2005 in memory of our son Daniel, who suffered from Microvillous Atrophy - an extremely rare genetic disorder of the bowel.
Microvillous Atrophy is a devastating condition which is little known and little understood. As a Charity, we are raising money to fund research into the condition, to isolate the gene responsible. The cost of funding a three-year research project is somewhere in the region of £100,000 so we have a long way to go!
Our son Daniel was a huge inspiration to everyone who met him. He spent his entire life in Great Ormond Street and Birmingham Children's Hospital where he fought bravely for sixteen and a half months.
Daniel survived an initial isolated liver transplant in November 2004, but very sadly lost his battle for life in April 2005 due to complications arising from a second transplant - a combined liver and small bowel.
The expertise, support and devotion of those at Great Ormond Street Hospital, Birmingham Children's Hospital and Edward House made a huge difference to Daniel's life and to us as his family.
As part of our 'making it better' ideal, we have already funded an internet connection at Edward House and purchased some TV-video players for the Liver Ward at Birmingham Children's Hospital. We have also donated to the Starfish Appeal to help improve facilities at Kings College Hospital's Liver Unit.
Daniel was lucky to have received two transplants in his short lifetime. As Daniel's family we will always be grateful to two very special families who gave Daniel such an incredible gift. Raising awareness of the need for more people to sign the organ donor register is very important to us.
Thank you for your interest in our Charity - please visit our website at www.makingitbetter.org.uk to learn more about our Charity.
Donating through this site is simple, fast and totally secure. It is also the most efficient way to donate. if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.
Many thanks once again for your kindness and for your interest in our Charity.
The Making it Better Team www.makingitbetter.org.uk
