Thank you all for visiting and donating on my page all money goes straight to the charity
My name is Darren Megarry... on 25th of april 2009 i was made the proudest brother and uncle in the whole world on the birth of my little niece Amber Star gillin... for those who do not no Amber has downs syndrome and i am running the bupa London 10k marathon for amber and for the downs syndrome association as well as myslef as it will be the first marathon i have taken part in..
to me amber is like every other 7 month old i have met and everytime i see amber the grin on my face is from ear to ear and every little thing she does makes me laugh never a dull moment when shes around well apart from when shes asleep but i still manage to chuckle at her lol... she has the most contagous cheeky giggle and smile EVER... even thinking bout her now is making me smile lol lol i cant wait to see keli and amber and i cant wait to see my beautiful baby niece grow up to be a beutiful woman...
THE DOWNS SYNDROME ASSOCIATION
There aim
Helping people with Down's syndrome to live full and rewarding lives.
Who are they
We are the only organisation in this country focusing solely on all aspects of living successfully with Down's syndrome. Since 1970, we have grown from being a local parent support group to a national charity with over 20,000 members, a national office in Teddington Middlesex, offices in Northern Ireland and Wales. Despite this, the organisation is run by a total staff of only 38 (many of them part time), and a network of around 100 regional volunteer-led support groups.
There mission
- We provide information and support for people with Down's syndrome, their families and carers, and the professionals who work with them.
- We strive to improve knowledge of the condition.
- We champion the rights of people with Down's syndrome.
- Information - run the helpline; provide info about all aspects of living with Down's syndrome including specialist advisers on social security benefits, education and health; advise new parents or anyone experiencing difficulties
- Fundraising - responsible for raising money for the association through events, sponsorship and trusts
- Communications - give key messages to the media, public and professionals; influence policy making; responsible for external publications
- Training - run courses throughout the UK for members, professionals and carers
- Membership - responsible for all administration surrounding new members, existing members and affiliated groups
What They do
Our organisation is divided into various teams, including:
thanks everyone for everything they doing to help me its sooooo good of you thanks ill keep u up to date on everything thanks again
my aim is to raise 300 but anything over will be spot on cheers
future fundraising is a 60 mile bike ride capital to coast in june 2010
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