Claire Willis is fundraising for N.S.P.K.U.

Di Palmer's Fundraising Page

Coast to Coast

on 14/06/2008

Di and Joe

Photos (1)

oh wow, you need to have Flash player installed and javascript enabled

Raising money for

N.S.P.K.U.

Charity Registration No. 273670

The NSPKU exists to help and support people with PKU, their families and carers. It works closely with medical professionals in the UK. It receives no government funding and is dependent on the generosity of its members and the public to fund practical support, raising awareness and, research into the condition. It publishes a wide range of booklets and leaflets (including food lists) for parents, PKUs and medical professionals. Events - it organises conferences and study days. It also sponsors medical research into PKU. It is run by the Council of Management who are all unpaid volunteers with PKU in their families.

Page owner

Claire Willis

RSS

Raised so far: £1,665.00

Donate now

My story

Thank you for visiting my fundraising page.

Four friends and I are taking on the challenge of walking the Coast to Coast. This classic route was originated and described by the celebrated A. Wainwright. The route is 190 miles long, which works out at about 14.5 miles per day.

I thought I would take this opportunity of trying to raise money and awareness for a registered charity very close to mine and my family's heart, called NSPKU.

My 2 year old grandson Joe, was diagnosed at birth with a rare genetic disorder called Phenylketonuria, a faulty enzyme in his liver is unable to metabolize protein correctly. Joe is a lively, bright, typical 2 year old who we all adore. If his condition is not managed correctly, Joe would have seizures and become irreversibly brain damaged.

There is currently no cure and the only way to manage Joe's condition is through a strictly controlled low protein diet. The NSPKU is a crucial support to families affected by this condition and are also active in lobbying for research into a cure for this rare disorder, of which only one in ten thousand babies are born with each year in the UK.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: The National Society for Phenylketonuria (UK) Ltd. will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

Many thanks for your support.

	Well Done Donation by The Mincers 17/07/08	£100.00 + £28.21 Gift Aid
	Well Done Donation by Phivi 15/07/08	£20.00
	Well done, a very worth cause. Donation by Sarah Keinzley 11/07/08	£10.00 + £2.82 Gift Aid
	Many congratulations, hope your feet recover soon! Donation by Stuart and Kelly Atkinson 30/06/08	£10.00 + £2.82 Gift Aid
	Well done Grannywith Love & admiration Grandma & grandpop Donation by Jane & Mike 29/06/08	£60.00 + £16.92 Gift Aid
	Hope you enjoyed it and we look forward to hearing about it ,Good Luck Donation by Rachel & Peter Graham 27/06/08	£20.00 + £5.64 Gift Aid
	Well done on completing this long & tiring trek. We knew you would do it! Donation by Ali & Bob 27/06/08	£10.00 + £2.82 Gift Aid
	Hope you're having a fab time - Joes very lucky to have a grandmother like you x Donation by Tracey & The Wrights! 24/06/08	£25.00 + £7.05 Gift Aid
	Good luck to you, a very just cause Donation by Paul Gow 23/06/08	£20.00 + £5.64 Gift Aid
	Good luck Di - mind the tow rope! Donation by Rita Rayner 22/06/08	£10.00
	Us Di's have to stick together! Good luck Donation by Di Sims 15/06/08	£10.00 + £2.82 Gift Aid
	happy trekking !! Donation by the stones 13/06/08	£20.00 + £5.64 Gift Aid
	Good luck :) Donation by Mike Wright 13/06/08	£20.00 + £5.64 Gift Aid
	Cyprus training will see you through. Or G&Ts! Good luck. Donation by lynn white 12/06/08	£20.00 + £5.64 Gift Aid
	Best of luck Donation by Paul Tomblin 10/06/08	£20.00 + £5.64 Gift Aid
	Good luck & hope you raise lots of awareness & support too! Donation by Kate Digby 10/06/08	£15.00 + £4.23 Gift Aid
	All the best Donation by Jim 10/06/08	£40.00 + £11.28 Gift Aid
	Donation by tony t 10/06/08	£25.00 + £7.05 Gift Aid
	Best of Luck, with your determination we know you can do it. Enjoy. Donation by Ron & Jane 08/06/08	£25.00 + £7.05 Gift Aid
	Very best wishes Di, we know you will succeed! Donation by Di and Keith Cockrell 06/06/08	£25.00 + £7.05 Gift Aid
	Good luck Di, may the weather be better than this week! Donation by Jenny Holmes 03/06/08	£10.00 + £2.82 Gift Aid
	What a fantastic thing to do for lovely Joe, keep smiling and Ill give you a free massage when you've done it! Donation by Julie, Aleks, Joe and Henry 22/05/08	£20.00 + £5.64 Gift Aid
	Best of luck Donation by James Ford 22/05/08	£10.00 + £2.82 Gift Aid
	Enjoy (??) the walk and Good Luck Donation by Derek & Christine Ford 21/05/08	£10.00 + £2.82 Gift Aid
	Go Granny Go!!! Donation by Jo & Emily Harmer 17/05/08	£30.00 + £8.46 Gift Aid
	Hope the sun shines, and you remember your plasters! Good luck. Donation by Jane, Charles, Will, Joe and Choppy! 30/04/08	£20.00 + £5.64 Gift Aid
	Have fun and good luck Donation by Ros and Alan Oliver 28/04/08	£20.00 + £5.64 Gift Aid
	Good luck Mrs Palmer. Donation by Bobby 23/04/08	£20.00
	Good Luck & Good Weather Donation by Rita Jillings 22/04/08	£20.00
	Good Luck! Donation by Sally 15/04/08	£10.00 + £2.82 Gift Aid

Donate now

* Total raised online:	£1,555.00
Offline donations:	£110.00
Gift Aid plus supplement:	£403.33

* Charities pay a small fee for our service.
Find out how much it is and what we do for it.