Claire Willis is fundraising for N.S.P.K.U.

Di Palmer's Fundraising Page

Coast to Coast

on 14/06/2008

Di and Joe

Photos (1)

oh wow, you need to have Flash player installed and javascript enabled

Raising money for

N.S.P.K.U.

Charity Registration No. 273670

The NSPKU exists to help and support people with PKU, their families and carers. It works closely with medical professionals in the UK. It receives no government funding and is dependent on the generosity of its members and the public to fund practical support, raising awareness and, research into the condition. It publishes a wide range of booklets and leaflets (including food lists) for parents, PKUs and medical professionals. Events - it organises conferences and study days. It also sponsors medical research into PKU. It is run by the Council of Management who are all unpaid volunteers with PKU in their families.

Page owner

Claire Willis

RSS

Raised so far: £1,665.00

Donate now

My story

Thank you for visiting my fundraising page.

Four friends and I are taking on the challenge of walking the Coast to Coast. This classic route was originated and described by the celebrated A. Wainwright. The route is 190 miles long, which works out at about 14.5 miles per day.

I thought I would take this opportunity of trying to raise money and awareness for a registered charity very close to mine and my family's heart, called NSPKU.

My 2 year old grandson Joe, was diagnosed at birth with a rare genetic disorder called Phenylketonuria, a faulty enzyme in his liver is unable to metabolize protein correctly. Joe is a lively, bright, typical 2 year old who we all adore. If his condition is not managed correctly, Joe would have seizures and become irreversibly brain damaged.

There is currently no cure and the only way to manage Joe's condition is through a strictly controlled low protein diet. The NSPKU is a crucial support to families affected by this condition and are also active in lobbying for research into a cure for this rare disorder, of which only one in ten thousand babies are born with each year in the UK.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: The National Society for Phenylketonuria (UK) Ltd. will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

Many thanks for your support.

	WELL DONE DI A VERY WORTHY CAUSE Donation by jill &keith 14/04/08	£20.00 + £5.64 Gift Aid
	Well Done You! Can't wait to hear how you get on! Joe's adorable. Donation by Sharon Ireland (Shazza) 12/04/08	£20.00 + £5.64 Gift Aid
	Donation by Martyn & Jeanette Rouse 10/04/08	£25.00 + £7.05 Gift Aid
	Good Luck!! Donation by Greg M 10/04/08	£50.00 + £14.10 Gift Aid
	Go for it ! x Donation by Will, Deb, AB&K. 08/04/08	£20.00 + £5.64 Gift Aid
	Donation by Roo 07/04/08	£25.00
	So very proud of what you are doing...will be thinking of you every step of the way!!! Donation by Mark, Jo & Girlies 06/04/08	£50.00 + £14.10 Gift Aid
	Good luck Di - enjoy it! Donation by Suzanne Gledhill 04/04/08	£50.00 + £14.10 Gift Aid
	Good Luck Di. x Donation by Sam Ford 04/04/08	£20.00 + £5.64 Gift Aid
	Enjoy the walk! Donation by Neill Ricketts 04/04/08	£20.00 + £5.64 Gift Aid
	Donation by steve green 04/04/08	£40.00 + £11.28 Gift Aid
	Go for it Di!! Good luck. Donation by Bob & Sally Crosbie 03/04/08	£20.00 + £5.64 Gift Aid
	Good luck and all the best !! Donation by Ford Harbidge 02/04/08	£50.00 + £14.10 Gift Aid
	Good on you ! Good Luck. Donation by Katie Harbidge 02/04/08	£50.00 + £14.10 Gift Aid
	Good Luck Donation by Kim 31/03/08	£20.00 + £5.64 Gift Aid
	Great cause - All the best ! Donation by Ru & Sarah 31/03/08	£20.00 + £5.64 Gift Aid
	Fab idea good luck Donation by Andrea Shaun and Isabel Coptcoat 31/03/08	£10.00 + £2.82 Gift Aid
	Go girl! xx Donation by Mags & Jon 31/03/08	£20.00 + £5.64 Gift Aid
	Donation by Andy Otley 28/03/08	£40.00 + £11.28 Gift Aid
	We are very proud of you Di. Good luck. Donation by Verity, Rick & Albie 28/03/08	£30.00 + £8.46 Gift Aid
	Good Luck :-) Donation by Nita Varsani 26/03/08	£20.00 + £5.64 Gift Aid
	Good luck with the blisters Donation by Martin Bowdery 25/03/08	£10.00
	Donation by Richard & Ron 25/03/08	£20.00
	go for it glamorous granny !!!!! :) Donation by Alan and Jay Parker 20/03/08	£20.00 + £5.64 Gift Aid
	What comes after the warm up walk? Donation by Rick 20/03/08	£20.00 + £5.64 Gift Aid
	Best of luck Donation by Keith Rudd 20/03/08	£10.00 + £2.82 Gift Aid
	Well done in advance Donation by Judith and Julian Barnard 20/03/08	£20.00 + £5.64 Gift Aid
	Good luck Di, I hope the weather is kind to you Donation by Jonny Cox 19/03/08	£20.00 + £5.64 Gift Aid
	Bonne chance!! Donation by Alice Blakeney-Edwards 19/03/08	£10.00 + £2.82 Gift Aid
	Best of luck - good cause Donation by Isabella 19/03/08	£5.00 + £1.41 Gift Aid

Donate now

* Total raised online:	£1,555.00
Offline donations:	£110.00
Gift Aid plus supplement:	£403.33

* Charities pay a small fee for our service.
Find out how much it is and what we do for it.