LAM Action is fundraising for LAM Action

The Doxycycline £50,000 Challenge

Photos (1)

oh wow, you need to have Flash player installed and javascript enabled

Raising money for

LAM Action

Charity Registration No. 1096637

Lymphangioleiomyomatosis or LAM is a rare lung disease that only occurs in women. It affects just over one woman in a million and LAM Action is aware of 120 women in the United Kingdom who have LAM. The purpose of LAM Action is twofold. Firstly, it is a self-help group to provide support and encouragement for patients with LAM. The second purpose of LAM Action is to raise money for research as it is often difficult to obtain money for research into a rare disease.

Page owner

LAM Action

Page closes

31/12/2007

RSS

Raised: 107%

Target: £50,000.00
Raised so far: £53,476.46

Donate now

My story

Thank you for visiting our fundraising page. Please dig deep.

Lymphangioleiomyomatosis (LAM) is a rare lung disease which affects women of child bearing age of all ethnic groups. Women with LAM develop enlarged air spaces in the lungs (cysts), caused by an excess of matrix metalloproteinases (MMPs), protein-digesting enzymes.

LAM causes recurrent lung collapse, breathlessness and death or need for lung transplant and is also associated with kidney tumours, called angiomyolipomas. There is no proven treatment for LAM.

Doxycycline, a commonly used antibiotic, can block MMP production and a small number of patients have shown some benefit from doxycycline. We will perform a study to test if doxycycline can slow the fall in lung function in patients with LAM.

Such a study will take 3 years. We need to raise £50,000 as grants we are applying for will not meet the full cost of the trial.

If we raise more than we need, the excess money will go to other medical research into LAM, patient support and other general purposes.

If we raise less than £50,000 we will ring-fence the money and keep working until we have enough for the clinical trial.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: LAM Action will receive your money faster and, if you are a taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

So please sponsor us now!

Many thanks for your support.

From

Everyone at LAM Action

	Donation by Mel Chapman 28/12/07	£100.00 + £28.21 Gift Aid
	Thanks for these recent donations from friends and family, much appreciated, Annabel Donation by Various 20/12/07	£50.00
	Janna, keep your chin up and keep fighting! Lots of love, Carmen and Neil Donation by Carmen 13/12/07	£15.00 + £4.23 Gift Aid
	Donation by Charles 10/12/07	£300.00 + £84.62 Gift Aid
	To my brave friend Janna, remember the diet is only temporary!! Love, M Donation by Mathilda Rainford 09/12/07	£30.00
	For Vanessa Donation by The Lumsdens 08/12/07	£50.00 + £14.10 Gift Aid
	In memory of Vanessa Donation by Helen 25/11/07	£50.00 + £14.10 Gift Aid
	good luck with the fundraising Donation by corrie verhoog 25/11/07	£20.00
	Sponsorship from Great South Run + donation - every little helps! Donation by Cheryl 18/11/07	£40.00
	Congratulations on completing the walk Annabel - Well done, you are a star, good luck fund raising Donation by wendy 16/11/07	£20.00 + £5.64 Gift Aid
	Well done, Ben Nevis next time! Donation by Simon 15/11/07	£5.00 + £1.41 Gift Aid
	For vanessa Donation by Anonmyous 07/11/07	£50.00 + £14.10 Gift Aid
	Donation by jimbo 05/11/07	£20.00 + £5.64 Gift Aid
	Donation by Andy and Jules 03/11/07	£50.00 + £14.10 Gift Aid
	For Vanessa Donation by Anonymous 03/11/07	£50.00 + £14.10 Gift Aid
	Good luck Annabel, enjoy the day xxx Donation by Andy and Bev and tribe! 03/11/07	£10.00 + £2.82 Gift Aid
	Donation by Andy Bailey 02/11/07	£10.00 + £2.82 Gift Aid
	Proceeds from Book Sale held at Beeston Nottingham Donation by AO Book Sale Beeston 02/11/07	£153.60
	We think you are amazing Havi and Samir Donation by Leila 02/11/07	£50.00 + £14.10 Gift Aid
	Good Luck to "Mad" Phil and Annabel Donation by Laura De Mattia 02/11/07	£30.00 + £8.46 Gift Aid
	All the best. Donation by Jabba 02/11/07	£10.00 + £2.82 Gift Aid
	Phil/Annabel - Hope you enjoy the walk - maybe take Wadey - he loves the outdoors! :) Donation by Ed Hall 02/11/07	£10.00 + £2.82 Gift Aid
	Good luck!! Donation by matt 02/11/07	£20.00 + £5.64 Gift Aid
	From Craig (Legsy) Powell of the Mavericks Donation by John Wade 02/11/07	£10.00 + £2.82 Gift Aid
	Good Luck Phil & Annabel Donation by Kate & Brads 02/11/07	£20.00 + £5.64 Gift Aid
	All the Best Donation by Dave 02/11/07	£10.00 + £2.82 Gift Aid
	In memory of my friend Vanessa Hall Donation by Wendy Allaway 01/11/07	£100.00 + £28.21 Gift Aid
	You're a star Bel, good luck! Donation by Shadey 31/10/07	£50.00 + £14.10 Gift Aid
	In memory of Vanessa Donation by Lucie Amos 29/10/07	£50.00 + £14.10 Gift Aid
	In memory of Vanessa Donation by Katharina Auer 29/10/07	£50.00

Donate now

* Total raised online:	£5,061.21
Offline donations:	£48,415.25
Gift Aid plus supplement:	£1,006.92

* Charities pay a small fee for our service.
Find out how much it is and what we do for it.