LAM Action is fundraising for LAM Action

The Doxycycline £50,000 Challenge

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Raising money for

LAM Action

Charity Registration No. 1096637

Lymphangioleiomyomatosis or LAM is a rare lung disease that only occurs in women. It affects just over one woman in a million and LAM Action is aware of 120 women in the United Kingdom who have LAM. The purpose of LAM Action is twofold. Firstly, it is a self-help group to provide support and encouragement for patients with LAM. The second purpose of LAM Action is to raise money for research as it is often difficult to obtain money for research into a rare disease.

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LAM Action

Page closes

31/12/2007

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Raised: 107%

Target: £50,000.00
Raised so far: £53,476.46

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My story

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Lymphangioleiomyomatosis (LAM) is a rare lung disease which affects women of child bearing age of all ethnic groups. Women with LAM develop enlarged air spaces in the lungs (cysts), caused by an excess of matrix metalloproteinases (MMPs), protein-digesting enzymes.

LAM causes recurrent lung collapse, breathlessness and death or need for lung transplant and is also associated with kidney tumours, called angiomyolipomas. There is no proven treatment for LAM.

Doxycycline, a commonly used antibiotic, can block MMP production and a small number of patients have shown some benefit from doxycycline. We will perform a study to test if doxycycline can slow the fall in lung function in patients with LAM.

Such a study will take 3 years. We need to raise £50,000 as grants we are applying for will not meet the full cost of the trial.

If we raise more than we need, the excess money will go to other medical research into LAM, patient support and other general purposes.

If we raise less than £50,000 we will ring-fence the money and keep working until we have enough for the clinical trial.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: LAM Action will receive your money faster and, if you are a taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

So please sponsor us now!

Many thanks for your support.

From

Everyone at LAM Action

	In memory of you, Vanessa Donation by Glenn Dunn 29/10/07	£100.00 + £28.21 Gift Aid
	In memory of Vanessa, who added so much to the LAMline Donation by Lucy Falconer 28/10/07	£50.00 + £14.10 Gift Aid
	In memory of our friend Vanessa and the happy times we shared together Donation by David & Jane 28/10/07	£150.00 + £42.31 Gift Aid
	Vanessa's indomitable spirit lives on in Tash & Tabs Donation by Chloe 26/10/07	£100.00 + £28.21 Gift Aid
	In memory of Vanessa Donation by Jeremy & Lyn 24/10/07	£50.00 + £14.10 Gift Aid
	In memory of my dear friend Vanessa. I will never forget our friendship and your kindness Donation by Clare Lauwerys 24/10/07	£200.00 + £56.41 Gift Aid
	in memory of Vanessa Hall Donation by stephen and samantha 24/10/07	£200.00 + £56.41 Gift Aid
	Good luck on your walk Donation by Graham Smith 19/10/07	£5.00 + £1.41 Gift Aid
	from Shrewsbury with love Donation by Nannie Two 18/10/07	£200.00 + £56.41 Gift Aid
	good luck on your walk Annabel Donation by wendy 17/10/07	£20.00 + £5.64 Gift Aid
	Donation by Helen Priestley 17/10/07	£5.00 + £1.41 Gift Aid
	Donation by Sarah 16/10/07	£5.00 + £1.41 Gift Aid
	Good luck Donation by anonymous 11/10/07	£50.00 + £14.10 Gift Aid
	Donation by LEATHAMS PLC 08/10/07	£500.00
	xx from your friends in longthorpe Donation by john mullins 06/10/07	£160.00 + £45.13 Gift Aid
	Money raised from a coffee morning held by Cavell Class, St. Joseph's School, Cranleigh Donation by CAVELL CLASS 06/10/07	£57.61
	Donation by Theresa Hewat 27/09/07	£50.00 + £14.10 Gift Aid
	Donation by Christiane Kuettner 26/09/07	£140.00
	from your friends in Longthorpe Peterborough Donation by john mullins 26/09/07	£165.00 + £46.54 Gift Aid
	Donation by Samphire 26/09/07	£20.00 + £5.64 Gift Aid
	Dear Havie, This comes with best wishes from Sheila Spalding Donation by Sheila Spalding 17/09/07	£50.00
	Donation by Audrey Russell 06/08/07	£300.00
	Donation by Peter Mercer 19/07/07	£50.00 + £14.10 Gift Aid
	With very best wishes and good luck from KaKaSaD Donation by Keith Mullins 19/07/07	£300.00 + £84.62 Gift Aid
	Happy Birthday mum! Good luck with the appeal, we can do it! Donation by David, Jack, Will and Libby Mercer 18/07/07	£150.00 + £42.31 Gift Aid
	With much love and best wishes from J & J Donation by Jay & Jeanette Mercer 18/07/07	£50.00 + £14.10 Gift Aid
	Donation by Grazyna 16/07/07	£150.00 + £42.31 Gift Aid
	Donation by Christiane Kuettner 14/07/07	£100.00
	with our Love and Prayers from John and Irene Donation by john mullins 11/07/07	£250.00 + £70.51 Gift Aid

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* Total raised online:	£5,061.21
Offline donations:	£48,415.25
Gift Aid plus supplement:	£1,006.92

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