Thank you for taking the time to visit my JustGiving page.

Last year my families’ world was turned upside down when my beautiful and cheeky 2 year old nephews, Zach and Ruben were diagnosed with A-T.  I had never heard of this condition and was speechless when I found out the hard facts about my nephews future. It is true what they say, Ignorance is bliss!

Ataxia-Telangiectasia (“A-T”) is a rare, neurodegenerative and progressive condition which starts in early childhood causing severe disability and premature death. It affects many parts of the body, robbing children of their independance. A-T affects the cerebellum, the part of the brain that controls movement and balance.  In time, A-T children find it difficult to move so a wheelchair is needed.  The immune system is greatly weakened, leaving children susceptible to infection and disease. 

The A-T society is a small national charity.  Their ultimate aim is to find a cure for A-T and money donated is used to fund the best possible research.  In the meantime, the A-T society provide support for the people living with A-T and their families, support the two national A-T clinics and campaign to provide better services.  In order to maintain and develop their work, they rely heavily on the generosity of supporters. The rarity of the condition means they do not enjoy widespread appeal but the needs of the children are great. This is why we need your help! 

  

To try and raise awareness, on the 10^th July 2011, I will be taking part in the British 10k London run.  I would be so grateful if you could support me by donating to this cause! All your donations, however big or small will make a huge difference and I thank you wholeheartedly for supporting me, my nephews and their A-T friends and family!

Despite the cards my nephews have been dealt, my family and I try to remain positive.  Research is advancing in the field of genetics and A-T and with your help, we know a cure will be found.

 

'If it were not for hopes, the heart would break'

(Thomas Fuller)