Story
Thanks for taking the time to visit my JustGiving page. I'm hiking the Yorkshire 3 peaks to help raise money for Evie, my friends 2 year old daughter.
From the age of around 9 months Evie stopped hitting developmental milestones; her cognitive development is severely delayed, she is not able to talk, and she has hypermobility, meaning her joints are excessively flexible and she struggles to support herself.
Despite ongoing tests and assessment, Evie's condition remains largely undiagnosed. A recent MRI scan revealed an abnormality called hypomyelination, which is a white matter brain condition that causes the processing of information to be distorted.
Every day, Evie shows a desire to move and have close contact with people – she cuddles, smiles and blows kisses.
You can read more about Evie's condition and associated fundraising efforts here: https://www.justgiving.com/evieseverest
The funds raised will go towards treatment to help Evie. Thank you in advance for support! Dave
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