Havi Carel is fundraising for LAM Action

LAM Patient 24 Mile Bike Ride

bristol bike ride

on 25/06/2006

Photos (1)

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Team members:

Havi Carel

Raising money for

LAM Action

Charity Registration No. 1096637

Lymphangioleiomyomatosis or LAM is a rare lung disease that only occurs in women. It affects just over one woman in a million and LAM Action is aware of 120 women in the United Kingdom who have LAM. The purpose of LAM Action is twofold. Firstly, it is a self-help group to provide support and encouragement for patients with LAM. The second purpose of LAM Action is to raise money for research as it is often difficult to obtain money for research into a rare disease.

Page owner

Havi Carel

RSS

Raised: 96%

Target: £6,000.00
Raised so far: £5,786.50

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My story

Hi there!

Thank you for visiting my fundraising page. Please sponsor my 24 mile bike ride to raise money for LAM research. The ride took place on 25 June, 2006 but you can still sponsor me - your donation will be just as useful!

As you may know, LAM has no cure or treatment at the moment. For me and all the other women with the disease, finding a treatment that at least halts the progress of the disease is crucial. At the moment, my lung capacity is about 30% of what it should be for a woman my age (35). I now have to use supplemental oxygen and will eventually be assessed for a lung transplant.

The money raised will go towards patient support and research, in the hope of finding a treatment that slows the prgression of the disease, so women with LAM can be stabilised while searching for a cure. There is so little known about LAM that we cannot hope for a cure to be found in the next few years, but there are some drugs that will hopefully stop the deterioration of our lungs. Therefore we urgently need drug trials to determine which drug can stabilise us. Please help me raise money for this under-researched, under-funded disease.

Another way of helping is by becoming an organ donor. You can do this online, on https://www.uktransplant.org.uk/ukt/Consent.do.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: LAM Action will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

Please feel free to forward this page to anyone else who may want to sponsor me.

Many thanks for your support.

Havi

	Go Girl Go Donation by Ben Buchanan 10/06/06	£35.00 + £9.87 Gift Aid
	Donation by anonymous 10/06/06	£100.00
	Donation by Maria & Panos 10/06/06	£30.00
	Allez Havi! plein de bises, x Cecile Donation by Cécile Laborde 09/06/06	£50.00 + £14.10 Gift Aid
	Donation by rob 09/06/06	£20.00 + £5.64 Gift Aid
	we're with you havi! Donation by fredda ronen 09/06/06	£20.00
	Tell me all about it in August :-) Donation by PG 09/06/06	£100.00
	Good luck!!!! --Lije Donation by Elijah Millgram 09/06/06	£50.00
	Have a healthy and safe ride- and much love Donation by Tovia and Bill Freedman 09/06/06	£100.00
	Good luck Havi, and lots of love! Donation by Leila and Geoff 08/06/06	£50.00 + £14.10 Gift Aid
	happy cycling! Donation by oliver james 08/06/06	£20.00 + £5.64 Gift Aid
	Donation by Phyllis McKay 08/06/06	£20.00 + £5.64 Gift Aid
	I wish I could be there and cheer you on, Havi! Donation by Christoph 08/06/06	£50.00
	Good Luck Havi! Donation by Matthew H 08/06/06	£100.00
	Do what you can and be proud of what you do! We are! We love you! Donation by Linda, Jason, Ezra & Isis 08/06/06	£30.00 + £8.46 Gift Aid
	Good luck Donation by Frosty 08/06/06	£50.00 + £14.10 Gift Aid
	Ride Well! Hope we'll see you over here! Donation by David Braddon-Mitchell 08/06/06	£20.00
	Go Havi! Miss you. Donation by Ted S 08/06/06	£100.00
	Go Havi! P.S. Better get LAM Action to work on their maths... Donation by Dave C 07/06/06	£100.00
	Err . . . so, how many grams is a mile? Donation by Stew-it 07/06/06	£20.00
	ali ve hatzlihi be bait sifrenu! power to women! Donation by Yona Shtrang, Haya Burshtein Miri Amir 07/06/06	£30.00 + £8.46 Gift Aid
	you won't even break a sweat. the real question is whether you can go 24 miles w/o stopping to pee! Donation by Karen B 07/06/06	£100.00
	you show lance armstrong whos the bike rider! Donation by danielandbella 07/06/06	£50.00
	Best of luck with the cycle ride Havi! I'll be rooting for you! Donation by Simon Thompson 07/06/06	£20.00 + £5.64 Gift Aid
	We are with you all the way... Donation by Nuzzi & Fuly 06/06/06	£100.00
	Good luck, Havi! Donation by Ulla 06/06/06	£20.00
	GOOD LUCK AND ALL MY LOVE! Donation by Alba 06/06/06	£50.00
	Best of luck Donation by Julian B 06/06/06	£100.00 + £28.21 Gift Aid
	Best wishes! Donation by Kieran Healy and Laurie Paul 06/06/06	£100.00
	Donation by Elisabeth Okasha 06/06/06	£20.00

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* Total raised online:	£5,556.50
Offline donations:	£230.00
Gift Aid plus supplement:	£616.99

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