Helen Carter is fundraising for Niemann-Pick Disease Group Uk

"Hope for Hollie" Campaign

Hollie Carter

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Raising money for

Niemann-Pick Disease Group Uk

Charity Registration No. 1061881

NPDG (UK) aims to make a difference to those whose lives are affected by Niemann-Pick diseases (NPD), through the provision of effective support, up to date information and the promotion of relevant research.

Page owner

Helen Carter

Page closes

01/12/2010

RSS

Raised: 90%

Target: £45,000.00
Raised so far: £40,705.94

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My story

Thank you for visiting my fundraising page.

Our 3 yr old daughter has recently been diagnosed with Niemann Pick C, a rare genetic disorder, the main characteristic of which is neurological decline.

My husband and I have recently launched our "Hope for Hollie" campaign, the main aim of which is to raise awareness of the disease. We hope that by launching this campaign we will be able to raise the profile of the disease and NPDG(UK) and help other children like Hollie who suffer from this disease. Through fundraising activities we also hope to raise substantial funds to help support NPDG(UK) and to assist with research into a treatment/cure for this devastating disease.

In the past year Holllie has began to show signs of mild upper eye movement restriction. We are told this is the very early signs of neurological onset. In light of this Hollie has started on a drug called Zavesca which has recently been licenced in the UK for use in NPC patients. Its by no means a cure but the hope is that this drug may slow the onset of the neurological symptoms for long enough to buy us some desperately needed extra time for scientists to find a better treatment or ultimately a cure.

Our life feels very much like a "ticking timebomb". Hollie is extremely precious to us and is such a lovely happy little girl, it is hard to contemplate her future with NPC.

Please show your support for our campaign and NPDG(UK) by donating through our "Just Giving" page.

The "Amount raised offline" shows the total raised so far from fundraising activities carried out by people/organisations supporting our "Hope for Hollie" Campaign. All money received through these activities has gone directly to NPDG(UK).

We thank you for your support

Helen and Pete Carter

www.hopeforhollie.co.uk

	Reiki for Fiona Nicholson Donation by Vicky Smith 21/05/09	£60.00
	horse riding lesson Donation by zane flanagan 21/05/09	£220.00
	Wayne Rooney shirt (great evening thank you) Donation by Ray & Jan 18/05/09	£1,050.00
	For Hollie and her family and thanks for a fabulous evening at the Ball! Donation by Mark & Jacqui 18/05/09	£200.00 + £56.41 Gift Aid
	bobby robson shirt Donation by david french 16/05/09	£400.00 + £112.82 Gift Aid
	ireland shirt Donation by kevin 16/05/09	£275.00
	Donation Boxing Gloves Donation by Daniel Lewis 16/05/09	£400.00
	golf Donation by russell taylor 16/05/09	£350.00
	With all my love to Hollie and her marvellous parents Donation by Josseline Bodet 20/04/09	£30.00
	Donation by paddy icaew london 23/02/09	£10.00 + £2.82 Gift Aid
	Carry on th good work Donation by Sheila Wilson 23/12/08	£10.00 + £2.82 Gift Aid
	All the best with your fundraising Donation by Paul, Tina, Bethany and Rebekah Wagnell 07/12/08	£20.00 + £5.64 Gift Aid
	From 10K to 13 Miles Well done you!!! Donation by Kim Rapson 27/10/08	£10.00 + £2.82 Gift Aid
	Loved the sexy pic of you in your running top! Good job hon! Donation by Leila Fox 24/10/08	£10.00 + £2.82 Gift Aid
	Well run Amanda! Donation by Lucie & Smithy 21/10/08	£20.00 + £5.64 Gift Aid
	Well done Amanda! Donation by Indeesh Bhogal 20/10/08	£40.00 + £11.28 Gift Aid
	Well done Amanda! Excellent time - good practise for next year! Donation by Katarina 14/10/08	£10.00 + £2.82 Gift Aid
	Well done Amanda! Donation by Joanne Quinn 13/10/08	£10.00 + £2.82 Gift Aid
	Well done Amanda Donation by Samantha Baxter 13/10/08	£10.00 + £2.82 Gift Aid
	Well done Mrs Lewis on a most deserving cause. Donation by Martin Lewis 13/10/08	£40.00 + £11.28 Gift Aid
	Well done on the run and the time, Amanda Donation by Nick Tinker 13/10/08	£10.00 + £2.82 Gift Aid
	Well done mate Donation by Suzanne Wood 13/10/08	£10.00 + £2.82 Gift Aid
	Well Done Boonie! Donation by Alison & John 13/10/08	£10.00 + £2.82 Gift Aid
	What a great cause! All the best. Donation by Alison Reid (Kroll Leeds) 13/10/08	£10.00 + £2.82 Gift Aid
	Good effort! Donation by Kehinde 13/10/08	£10.00 + £2.82 Gift Aid
	Hope you don't need to poo x Donation by Vern and Rory 11/10/08	£10.00 + £2.82 Gift Aid
	Good luck Amanda x excellent practice for the big one! Donation by Charmaine & Al 11/10/08	£20.00 + £5.64 Gift Aid
	All the best Amanda Donation by Elk 10/10/08	£20.00 + £5.64 Gift Aid
	Good Luck Amanda Donation by Tony W 10/10/08	£20.00 + £5.64 Gift Aid
	Good luck Amanda, I hope your blister heals in time (!) x Donation by GG 10/10/08	£10.00 + £2.82 Gift Aid

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* Total raised online:	£9,727.00
Offline donations:	£30,978.94
Gift Aid plus supplement:	£969.97

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