"Hope for Hollie" Campaign
£103,802.73 raised of £150,000.00 target
148 donations
My Target:
£150,000.00
£103,802.73 raised so far
How to make a donation
Donate online at - www.justgiving.com/helencarter1
By mobile internet Scan this code on your smartphone to go straight to Helen Carter's page.
By text message to donate £10 Text HFHC75 £10
to 70070
My story
Thank you for visiting my fundraising page.
Our 3 yr old daughter has recently been diagnosed with Niemann Pick C, a rare genetic disorder, the main characteristic of which is neurological decline.
My husband and I have recently launched our "Hope for Hollie" campaign, the main aim of which is to raise awareness of the disease. We hope that by launching this campaign we will be able to raise the profile of the disease and NPDG(UK) and help other children like Hollie who suffer from this disease. Through fundraising activities we also hope to raise substantial funds to help support NPDG(UK) and to assist with research into a treatment/cure for this devastating disease.
In the past year Holllie has began to show signs of mild upper eye movement restriction. We are told this is the very early signs of neurological onset. In light of this Hollie has started on a drug called Zavesca which has recently been licenced in the UK for use in NPC patients. Its by no means a cure but the hope is that this drug may slow the onset of the neurological symptoms for long enough to buy us some desperately needed extra time for scientists to find a better treatment or ultimately a cure.
Our life feels very much like a "ticking timebomb". Hollie is extremely precious to us and is such a lovely happy little girl, it is hard to contemplate her future with NPC.
Please show your support for our campaign and NPDG(UK) by donating through our "Just Giving" page.
The "Amount raised offline" shows the total raised so far from fundraising activities carried out by people/organisations supporting our "Hope for Hollie" Campaign. All money received through these activities has gone directly to NPDG(UK).
We thank you for your support
Helen and Pete Carter
My gallery 7
My charity
Niemann-Pick Disease Group Uk
Charity Registration No. 1144406
NPDG (UK) aims to make a difference to those whose lives are affected by Niemann-Pick diseases (NPD), through the provision of effective support, up to date information and the promotion of relevant research.
Donations 148
Well done mate
Donation by Suzanne Wood on 13/10/08
£10.00
+ £2.82 Gift Aid
Well Done Boonie!
Donation by Alison & John on 13/10/08
£10.00
+ £2.82 Gift Aid
What a great cause! All the best.
Donation by Alison Reid (Kroll Leeds) on 13/10/08
£10.00
+ £2.82 Gift Aid
Good effort!
Donation by Kehinde on 13/10/08
£10.00
+ £2.82 Gift Aid
Hope you don't need to poo x
Donation by Vern and Rory on 11/10/08
£10.00
+ £2.82 Gift Aid
Good luck Amanda x excellent practice for the big one!
Donation by Charmaine & Al on 11/10/08
£20.00
+ £5.64 Gift Aid
All the best Amanda
Donation by Elk on 10/10/08
£20.00
+ £5.64 Gift Aid
Good Luck Amanda
Donation by Tony W on 10/10/08
£20.00
+ £5.64 Gift Aid
Good luck Amanda, I hope your blister heals in time (!) x
Donation by GG on 10/10/08
£10.00
+ £2.82 Gift Aid
Wow! What a target!
Donation by Maria on 09/10/08
£20.00
+ £5.64 Gift Aid
Good luck
Donation by Chris & Jenny on 09/10/08
£10.00
+ £2.82 Gift Aid
Amanda - enjoy the run
Donation by Pat & Terry Jones on 09/10/08
£13.00
+ £3.67 Gift Aid
good luck!
Donation by PB on 09/10/08
£30.00
+ £8.46 Gift Aid
Good Luck - xxx
Donation by Caroline & Chris on 09/10/08
£20.00
+ £5.64 Gift Aid
Good luck Amanda!!x
Donation by Della Niyazi on 09/10/08
£10.00
+ £2.82 Gift Aid
best of luck LV
Donation by Conor Sharpe on 09/10/08
£20.00
+ £5.64 Gift Aid
good luck
Donation by Conor Murphy on 09/10/08
£50.00
+ £14.10 Gift Aid
Donation by AP on 09/10/08
£30.00
+ £8.46 Gift Aid
Good Luck. Wish I won the lottery so we can donate more. Love to you all xx
Donation by Clare, Andy and Charlie Mills on 09/10/08
£20.00
+ £5.64 Gift Aid
Good cause. Enjoy the run mate!
Donation by John Breslin on 09/10/08
£20.00
+ £5.64 Gift Aid
hope all the "training" pays off....good luck LV
Donation by Brian Dooley on 09/10/08
£50.00
+ £14.10 Gift Aid
good luck
Donation by Harry O'Reilly on 09/10/08
£20.00
+ £5.64 Gift Aid
Keep on running teeth..
Donation by Matthew Gibbs on 09/10/08
£30.00
+ £8.46 Gift Aid
Good luck teeth!
Donation by Philip Hughes on 09/10/08
£30.00
+ £8.46 Gift Aid
Good luck chuck! Boozing Friday, Alton Towers rides Saturday then 13 miles running Sunday. You're gonna be so sick on Sunday night! x
Donation by Mandy Roller on 09/10/08
£20.00
+ £5.64 Gift Aid
Donation summary
- * Online donations£14,790.73
- Offline donations£89,000.00
- Text donations£12.00
- Total raised£103,802.73
- Gift Aid£1,398.90
* Charities pay a small fee for our service. Find out how much it is and what we do for it.
