"Hope for Hollie" Campaign
£103,802.73 raised of £150,000.00 target
148 donations
My Target:
£150,000.00
£103,802.73 raised so far
How to make a donation
Donate online at - www.justgiving.com/helencarter1
By mobile internet Scan this code on your smartphone to go straight to Helen Carter's page.
By text message to donate £10 Text HFHC75 £10
to 70070
My story
Thank you for visiting my fundraising page.
Our 3 yr old daughter has recently been diagnosed with Niemann Pick C, a rare genetic disorder, the main characteristic of which is neurological decline.
My husband and I have recently launched our "Hope for Hollie" campaign, the main aim of which is to raise awareness of the disease. We hope that by launching this campaign we will be able to raise the profile of the disease and NPDG(UK) and help other children like Hollie who suffer from this disease. Through fundraising activities we also hope to raise substantial funds to help support NPDG(UK) and to assist with research into a treatment/cure for this devastating disease.
In the past year Holllie has began to show signs of mild upper eye movement restriction. We are told this is the very early signs of neurological onset. In light of this Hollie has started on a drug called Zavesca which has recently been licenced in the UK for use in NPC patients. Its by no means a cure but the hope is that this drug may slow the onset of the neurological symptoms for long enough to buy us some desperately needed extra time for scientists to find a better treatment or ultimately a cure.
Our life feels very much like a "ticking timebomb". Hollie is extremely precious to us and is such a lovely happy little girl, it is hard to contemplate her future with NPC.
Please show your support for our campaign and NPDG(UK) by donating through our "Just Giving" page.
The "Amount raised offline" shows the total raised so far from fundraising activities carried out by people/organisations supporting our "Hope for Hollie" Campaign. All money received through these activities has gone directly to NPDG(UK).
We thank you for your support
Helen and Pete Carter
My gallery 7
My charity
Niemann-Pick Disease Group Uk
Charity Registration No. 1144406
NPDG (UK) aims to make a difference to those whose lives are affected by Niemann-Pick diseases (NPD), through the provision of effective support, up to date information and the promotion of relevant research.
Donations 148
Donation by Abi Mosley on 21/07/08
£10.00
+ £2.82 Gift Aid
Just heard you on Radio 2 and your story has really touched me. I truly hope a cure is found for Hollie. Good luck xxx
Donation by Samantha Biggs on 21/07/08
£20.00
+ £5.64 Gift Aid
Hope you reach your target. I heard you on Radio 2 and you sound an amazingly inspiring family.
Donation by Vicky on 21/07/08
£10.00
+ £2.82 Gift Aid
Can't imagine how you cope with this tragedy. I have two wonderful grandchildren and it breaks my
Donation by supanana on 21/07/08
£25.00
+ £7.05 Gift Aid
Just heard you on Radio 2 and am amazed at how articulate and composed you remain in the face of such a tragedy. I wish this could be more. xx
Donation by Claire on 21/07/08
£10.00
+ £2.82 Gift Aid
I cried when i heard your story. You are all going to have to be so brave GOOD GOOD luck to you. God Bless.
Donation by Anita on 21/07/08
£20.00
+ £5.64 Gift Aid
Best wishes, It's not enough but I hope it helps xxx
Donation by Denise Bickley on 21/07/08
£10.00
+ £2.82 Gift Aid
I'm a parent and my heart goes out to you all.
Donation by Rick on 21/07/08
£25.00
+ £7.05 Gift Aid
Just heard you on Radio 2 and I really wanted to contribute as a Dad with two daughters. Good luck and all the best.
Donation by LT on 21/07/08
£20.00
+ £5.64 Gift Aid
Sorry it can't be more. Hollie is a beautiful little girl enjoy her every moment.
Donation by Margo on 21/07/08
£10.00
good luck hollie!to hollie's family: thinking of you. take care and chin up! xxx
Donation by debbie russell on 21/07/08
£10.00
+ £2.82 Gift Aid
Such a heartbreaking story. You were amazing on Radio 2 today. With our love xxx
Donation by Mel Q on 21/07/08
£10.00
+ £2.82 Gift Aid
Donation by Anonymous on 21/07/08
£18.00
+ £5.08 Gift Aid
Donation by Anon on 16/07/08
£2.00
+ £0.56 Gift Aid
sorry it cant be more!!!!!!!!!!!!
Donation by del walsh on 26/06/08
£10.00
+ £2.82 Gift Aid
for westlife picture from ball
Donation by melanie reynolds on 08/05/08
£100.00
Awesome event and thanks Keith
Donation by Mark on 09/04/08
£300.00
+ £84.62 Gift Aid
Congratualtions ! what a fantastic night ! I am so glad I could contribute to such a worthwhile cause! Keep up the good work xx
Donation by Sandra Shand on 07/04/08
£270.00
Auction - £180 comedy, £105 poem
Donation by Vicky & Al Smith on 07/04/08
£285.00
Sorry we couldn't make it last night. Lots of love xx
Donation by Sarah and Mark G on 06/04/08
£100.00
+ £28.21 Gift Aid
Thank you for a really enjoyable evening. All the best.
Donation by Steve and Jo Cook on 06/04/08
£100.00
+ £28.21 Gift Aid
donation - gareth edds shirt
Donation by chris on 06/04/08
£110.00
Donation - abu Dabhi
Donation by Dean on 05/04/08
£2,250.00
Donation - Wedding
Donation by Gillian on 05/04/08
£400.00
Donation - Golf game
Donation by Russell on 05/04/08
£380.00
Donation summary
- * Online donations£14,790.73
- Offline donations£89,000.00
- Text donations£12.00
- Total raised£103,802.73
- Gift Aid£1,398.65
* Charities pay a small fee for our service. Find out how much it is and what we do for it.
