My story

Thank you for visiting my fundraising page.

Our 3 yr old daughter has recently been diagnosed with Niemann Pick C, a  rare genetic disorder, the main characteristic of which is neurological decline.

My husband and I have recently launched our "Hope for Hollie" campaign, the main aim of which is to raise awareness of the disease.  We hope that by launching this campaign we will be able to raise the profile of the disease and NPDG(UK) and help other children like Hollie who suffer from this disease.  Through fundraising activities we also hope to raise substantial funds to help support NPDG(UK) and to assist with research into a treatment/cure for this devastating disease.

In the past year Holllie has began to show signs of mild upper eye movement restriction. We are told this is the very early signs of neurological onset. In light of this Hollie has started on a drug called Zavesca which has recently been licenced in the UK for use in NPC patients. Its by no means a cure but the hope is that this drug may slow the onset of the neurological symptoms for long enough to buy us some desperately needed extra time for scientists to find a better treatment or ultimately a cure.

Our life feels very much like a "ticking timebomb".  Hollie is extremely precious to us and is such a lovely happy little girl, it is hard to contemplate her future with NPC.

Please show your support for our campaign and NPDG(UK) by donating through our "Just Giving" page. 

The "Amount raised offline" shows the total raised so far from fundraising activities carried out by people/organisations  supporting our "Hope for Hollie" Campaign.  All money received through these activities has gone directly to NPDG(UK).

We thank you for your support

Helen and Pete Carter

www.hopeforhollie.co.uk

My charity

Niemann-Pick Disease Group Uk

Niemann-Pick Disease Group Uk

Charity Registration No. 1144406

NPDG (UK) aims to make a difference to those whose lives are affected by Niemann-Pick diseases (NPD), through the provision of effective support, up to date information and the promotion of relevant research.

Donations 148

Sorry I can't make the ball. I'm sure it will be a huge success

Donation by Ann on 02/04/08

£50.00

+ £14.10 Gift Aid

Good luck with the ball - hope all goes well.

Donation by Janet Pinto on 19/03/08

£20.00

+ £5.64 Gift Aid

best wishes and good luck with your campaign

Donation by Katerina (TSD) on 05/03/08

£30.00

+ £8.46 Gift Aid

Very best wishes

Donation by Dominic & Sylvia McGuinness on 28/02/08

£50.00

+ £14.10 Gift Aid

WISHES YOU BEST OF GOOD FORTUNE

Donation by GARY JOHNSTON on 19/02/08

£100.00

+ £28.21 Gift Aid

Wishing you luck and success with the research

Donation by Wendy on 31/01/08

£20.00

+ £5.64 Gift Aid

Best of luck

Donation by Anne & Rob on 31/01/08

£50.00

+ £14.10 Gift Aid

Good Luck Hollie, you are in our thoughts.

Donation by WorkSmart on 30/01/08

£95.00

+ £26.79 Gift Aid

Best of Luck with the Hope for Hollie Campaign

Donation by julie on 28/01/08

£10.00

+ £2.82 Gift Aid

Best wishes and prayers for Hollie and family

Donation by Dorothy, from LF on 27/01/08

£20.00

Donation by Peter (Christy Trading) on 21/01/08

£10.00

+ £2.82 Gift Aid

Good luck with reaching your target

Donation by Helen on 17/01/08

£20.00

+ £5.64 Gift Aid

Your daughter has touched our hearts and we hope the money helps our little girl xxxx

Donation by Richard & Emma on 22/12/07

£50.00

+ £14.10 Gift Aid

I hoe this helps

Donation by JIM on 19/12/07

£20.00

+ £5.64 Gift Aid

Please accept my donation with kind wishes

Donation by Emily on 07/12/07

£20.00

+ £5.64 Gift Aid

Donation by Pete & Sheryl on 04/12/07

£50.00

+ £14.10 Gift Aid

Money collected for a Dress Down Day on Friday 30/11/07

Donation by Abbey SARU department on 03/12/07

£28.00

Lots of Love Hope all goes well

Donation by Jan and Ray on 09/11/07

£100.00

+ £28.21 Gift Aid

Wishing you well and praying for Hollie

Donation by Elaine & Gerry on 04/11/07

£50.00

+ £14.10 Gift Aid

Every penny will make a difference

Donation by vicky & ross on 01/11/07

£10.00

+ £2.82 Gift Aid

Good luck with all that you are doing. We are with you all the way

Donation by Diane & Simon on 01/11/07

£20.00

+ £5.64 Gift Aid

What can I say but good luck to you all

Donation by Sue Burch on 01/11/07

£10.00

+ £2.82 Gift Aid

Good Luck with the Target for Hollie!!

Donation by Michaela on 30/10/07

£10.00

+ £2.82 Gift Aid

Donation summary

  • * Online donations£14,790.73
  • Offline donations£89,000.00
  • Text donations£12.00
  • Total raised£103,802.73
  • Gift Aid£1,398.90

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