My story

Thank you for visiting my fundraising page.

Our 3 yr old daughter has recently been diagnosed with Niemann Pick C, a  rare genetic disorder, the main characteristic of which is neurological decline.

My husband and I have recently launched our "Hope for Hollie" campaign, the main aim of which is to raise awareness of the disease.  We hope that by launching this campaign we will be able to raise the profile of the disease and NPDG(UK) and help other children like Hollie who suffer from this disease.  Through fundraising activities we also hope to raise substantial funds to help support NPDG(UK) and to assist with research into a treatment/cure for this devastating disease.

In the past year Holllie has began to show signs of mild upper eye movement restriction. We are told this is the very early signs of neurological onset. In light of this Hollie has started on a drug called Zavesca which has recently been licenced in the UK for use in NPC patients. Its by no means a cure but the hope is that this drug may slow the onset of the neurological symptoms for long enough to buy us some desperately needed extra time for scientists to find a better treatment or ultimately a cure.

Our life feels very much like a "ticking timebomb".  Hollie is extremely precious to us and is such a lovely happy little girl, it is hard to contemplate her future with NPC.

Please show your support for our campaign and NPDG(UK) by donating through our "Just Giving" page. 

The "Amount raised offline" shows the total raised so far from fundraising activities carried out by people/organisations  supporting our "Hope for Hollie" Campaign.  All money received through these activities has gone directly to NPDG(UK).

We thank you for your support

Helen and Pete Carter

www.hopeforhollie.co.uk

My charity

Niemann-Pick Disease Group Uk

Niemann-Pick Disease Group Uk

Charity Registration No. 1144406

NPDG (UK) aims to make a difference to those whose lives are affected by Niemann-Pick diseases (NPD), through the provision of effective support, up to date information and the promotion of relevant research.

Donations 148

text donation

Donation by Anonymous on 28/05/12

£1.00

text donation

Donation by Anonymous on 28/05/12

£1.00

text donation

Donation by Anonymous on 04/05/12

£2.00

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Good luck with your campaign. Sending massive prayers.

Donation by Bobby Mitchell on 01/04/12

£30.00

+ £7.50 Gift Aid

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We raised money through a strawberries & cream sale & dress down day. We are proud to support Hope for Hollie & hope to raise more money during 2012.

Donation by Accenture on 20/12/11

£188.73

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LOts of love to hollie x x

Donation by dana smIth on 14/10/11

£2.00

+ £0.50 Gift Aid

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Donation by Anonymous on 14/10/11

£5.00

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Donation by Anonymous on 14/10/11

£1.00

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Donation by Katie Moran on 03/06/11

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Donation by Susan Cox on 04/05/11

£75.00

+ £18.75 Gift Aid

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Donation by Estelle Reeve on 22/11/10

£650.00

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Donation by Richard Ellis on 18/11/10

£500.00

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Donation by David French on 18/11/10

£600.00

+ £169.23 Gift Aid

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Donation by Bev Markham on 15/11/10

Donation by Keith Andrews on 05/11/10

£700.00

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Donation by paul ollier on 27/10/10

£900.00

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Helen I have just watched your DVD and it brought tears to my eyes. You are an amazing person and I send you and your family my love. Anita Wright

Donation by Anita Wright on 26/10/10

£10.00

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Donation by dominic dyer on 26/10/10

£325.00

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Helen - have just seen the DVD from the ball - can't believe all that you are doing - you are truely amazing xx

Donation by Jo Wright on 24/10/10

£50.00

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Skydiving event

Donation by Stephen Cox on 10/10/10

£60.00

+ £16.92 Gift Aid

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Skydiving event

Donation by Suzanne Lambert on 10/10/10

£15.00

+ £4.23 Gift Aid

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The rest of the donations for the sky jump. Good luck!

Donation by Sonal Amin-Smith on 09/10/10

£190.00

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Thank you Sturt for your donation!

Donation by TANYA LAMBERT on 22/08/10

£20.00

+ £5.64 Gift Aid

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Donation by Jacqueline Deeley on 05/08/10

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Donation from Ed & Pam Lambert in lieu of birthday present for Tanya Lambert

Donation by Edward Lambert on 04/08/10

£40.00

+ £11.28 Gift Aid

Donation summary

  • * Online donations£14,790.73
  • Offline donations£89,000.00
  • Text donations£12.00
  • Total raised£103,802.73
  • Gift Aid£1,398.65

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