Joe passed away suddenly but peacefully at home on 5 July 2012, following a nine year fight with NF2. Beloved son, brother and friend – full of love and laughter,  who inspired everyone with his courage.

Joe's family have set up the 'Joe Guglielmi Memorial Fund' in memory of Joe, to support other young people with NF2.

To raise money for the fund, Tom and Anna are taking part in a number of sponsored events during 2013, including running the London Marathon on 21 April 2013, in memory of their wonderful brother.

Anything you can give will be hugely appreciated - each and every donation will be a huge support to others with this terrible condition. Thank you in advance for your generosity.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.