Philip Hughes is fundraising for Moebius Research Trust

Isaac Hughes's Fundraising Page

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Raising money for

Moebius Research Trust

Charity Registration No. SC037454

Moebius Syndrome is a rare congenital disorder which to date, has no cure. It affects primarily the 6th & 7th cranial nerves, which means that those with the condition are unable to move their faces (can't smile, frown, suck, grimace or blink eyes). We aim to raise £250,000 to fund research into the cause of Moebius.

Page owner

Philip Hughes

Page closes

22/09/2010

RSS

Raised: 21%

Target: £20,000.00
Raised so far: £4,218.14

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My story

I am a very happy person but because I was born with Moebius Syndrome I cannot show people when I am smiling. My face muscles are paralised which means I cannot smile or frown. If you want to learn more about me you can keep up to date with what I am doing by visiting my blog at www.isaachughes.blogspot.com.

Moebius is a very rare syndrome and there are only around 200 people in the Uk with it. This means there is little research into it. My Mummy and Daddy are trying to help raise money so they can fund research into this condition. For more information you can visit www.moebiusresearchtrust.org

We are going to do lots of fundraising over the next 18 months and all donations would be gratefully received. Watch this space for fundraising events that are coming up.

Big hugs and thanks
Isaac.

	I hope this small amount goes a little way to helping Isaac. Tom :) Donation by Tom Kilbourn 29/10/09	£20.00 + £5.64 Gift Aid
	Donation as a wedding anniversay gift for Jacquie and David Whetstone - best of luck with your fundraising Donation by Lucy & Adrian Jenkins and family 15/09/09	£20.00 + £5.64 Gift Aid
	with love xxx Donation by Philip Hughes 07/09/09	£338.74 + £95.54 Gift Aid
	With love xxx Donation by Philip Hughes 06/09/09	£513.00 + £144.69 Gift Aid
	best wishes Jacquie and David Donation by Jacquie and david Whetstone 02/02/09	£100.00 + £28.21 Gift Aid
	From friends of MRT in Stallington Donation by Tim & Rosie 11/11/08	£270.00 + £76.15 Gift Aid
	With love from Ella and Huw Donation by Ella and Huw 14/09/08	£300.00 + £84.62 Gift Aid
	From the Owain Glyndwr Donation by Owain Glyndwr 07/09/08	£44.40 + £12.52 Gift Aid
	plus an additional £500 sent directly to the charity. Fom everyone at Don's party xxx Donation by Salsa Inferno 07/07/08	£732.00
	All the best, with love from the Easton family x Donation by Simon Easton 18/05/08	£20.00 + £5.64 Gift Aid
	Here's a starter. We'll look to raise some more funds to post later. Keep up the great work!! Donation by Tim & Rosie Beasley 15/05/08	£200.00 + £56.41 Gift Aid
	with Love from Great Granny Hughes Donation by Great Granny H 09/05/08	£500.00 + £141.03 Gift Aid
	from the people of Cilcain Donation by Cilcain Village 09/05/08	£90.00 + £25.38 Gift Aid
	an extra birthday present love Auntie Nicky Donation by Auntie Nicky 15/04/08	£50.00
	Good luck with the fundraising (Nanw and Mabli's Nain & Taid) Donation by Brian & Ceri Morris 14/04/08	£10.00 + £2.82 Gift Aid
	Hugs and kisses from Nanw and Mabli Donation by Hampson Family 14/04/08	£20.00 + £5.64 Gift Aid
	Love Aunty Valerie and Uncle John Donation by Aunty Valerie & Uncle John 10/04/08	£100.00 + £28.21 Gift Aid
	Love from Great Granny B Donation by Doris Bunting 09/04/08	£500.00 + £141.03 Gift Aid
	Love from Leicester grandma & grandad Donation by Carole & Derek Hughes 09/04/08	£100.00 + £28.21 Gift Aid
	Good luck with the fundraising Donation by Gill Sankey 26/03/08	£40.00 + £11.28 Gift Aid
	From Amy Lightfoot and all her friends Donation by Bishops Blue Coat School, Chester 23/03/08	£100.00 + £28.21 Gift Aid
	It was a pleasure to meet Isaac at Cilcain Chapel, good luck with the Fund Rasing. Donation by John & Kathleen Mason 22/03/08	£50.00 + £14.10 Gift Aid
	from all at the Cilcain Chapel lunch Donation by Cilcain Chapel 22/03/08	£100.00 + £28.21 Gift Aid

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* Total raised online:	£4,218.14
Offline donations:	£0.00
Gift Aid plus supplement:	£969.17

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