Isaac Hughes's Fundraising Page
Page creator: Philip Hughes
Page closes: 22nd Sep 2009
Fundraising Page Image
About the charity : Moebius Research Trust Moebius Research Trust
Moebius Syndrome is a rare congenital disorder which to date, has no cure. It affects primarily the 6th & 7th cranial nerves, which means that those with the condition are unable to move their faces (can't smile, frown, suck, grimace or blink eyes). We aim to raise £250,000 to fund research into the cause of Moebius.
Charity Registration No SC037454
Fundraising target:  £20,000.00
Donations so far:  £ 2,956.40
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Personal message:

 I am a very happy person but because I was born with Moebius Syndrome I cannot show people when I am smiling. My face muscles are paralised which means I cannot smile or frown.  If you want to learn more about me you can keep up to date with what I am doing by visiting my blog at www.isaachughes.blogspot.com.

Moebius is a very rare syndrome and there are only around 200 people in the Uk with it. This means there is little research into it. My Mummy and Daddy are trying to help raise money so they can fund research into this condition. For more information you can visit www.moebiusresearchtrust.org

We are going to do lots of fundraising over the next 18 months and all donations would be gratefully received.  Watch this space for fundraising events that are coming up.

Big hugs and thanks
Isaac.
Display Name Date Amount Tax Bonus  Comment
Ella and Huw 14/09/2008 £300.00 £84.62 With love from Ella and Huw 
Owain Glyndwr 07/09/2008 £44.40 £12.52 From the Owain Glyndwr 
Salsa Inferno 07/07/2008 £732.00 n/a plus an additional £500 sent directly to the charity. Fom everyone at Don's party xxx 
Simon Easton 18/05/2008 £20.00 £5.64 All the best, with love from the Easton family x 
Tim & Rosie Beasley 15/05/2008 £200.00 £56.41 Here's a starter. We'll look to raise some more funds to post later. Keep up the great work!! 
Great Granny H 09/05/2008 £500.00 £141.03 with Love from Great Granny Hughes 
Cilcain Village 09/05/2008 £90.00 £25.38 from the people of Cilcain 
Auntie Nicky 15/04/2008 £50.00 n/a an extra birthday present love Auntie Nicky 
Brian & Ceri Morris 14/04/2008 £10.00 £2.82 Good luck with the fundraising (Nanw and Mabli's Nain & Taid) 
Hampson Family 14/04/2008 £20.00 £5.64 Hugs and kisses from Nanw and Mabli 
Aunty Valerie & Uncle John 10/04/2008 £100.00 £28.21 Love Aunty Valerie and Uncle John 
Doris Bunting 09/04/2008 £500.00 £141.03 Love from Great Granny B 
Carole & Derek Hughes 09/04/2008 £100.00 £28.21 Love from Leicester grandma & grandad 
Gill Sankey 26/03/2008 £40.00 £11.28 Good luck with the fundraising 
Bishops Blue Coat School, Chester 23/03/2008 £100.00 £28.21 From Amy Lightfoot and all her friends 
John & Kathleen Mason 22/03/2008 £50.00 £14.10 It was a pleasure to meet Isaac at Cilcain Chapel, good luck with the Fund Rasing. 
Cilcain Chapel 22/03/2008 £100.00 £28.21 from all at the Cilcain Chapel lunch 
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*Total donated online: £2,956.40
Amount raised offline: £0.00
Gift Aid plus supplement: £613.29
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