Enola has Morquio Disease: Morquio disease is one of the mucopolysaccharidosis, also known as MPS lV. It is a rare metabolic condition. In the UK there are approximately 82 individuals with Morquio. It is a degenerative condition causing severe physical disability and skeletal problems. Many individuals may not grow more than a metre tall and will become increasingly dependent. Individuals have a severely restricted range of movement and suffer pain and discomfort in all their joints.
The MPS Society funds and supports a number of projects which includes the potential treatment for the disease (Enzyme Replacement Therapy) that is around the corner. The Society has kept individuals informed through their seasonal magazine. They also facilitated an International Morquio Conference bringing medical experts and pharmaceutical companies together with sufferers and families to explain the future of treatment.Enola does not let anything stand in her way, even now (wearing the HALO); she has an amazing character and presence. Enola has and will benefit from the support given to the Society.
I am planning to run in the Great North Run 2009 in under 1 Hr 30 mins and would greatly appreciate all donations made to aid not only Enola but also other suffers of MPS.Thanks for visiting my fundraising page.
Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: The Society For Mucopolysaccharide Diseases gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.
So please sponsor me now!
