My story

 

It is with immense sadness that we report the news that Jamie Inglis lost his battle against neuroblastoma on 15 January 2013.

 

He passed away peacefully in hospital with his parents by his side. Jamie’s appeal was raising funds to cover his treatment costs in Germany. After these costs have been met, Jamie’s mum and Dad have asked that any remaining money is allocated to help other children having neuroblastoma treatment now and to fund research into this frighteningly aggressive cancer.

 

You can still fundraise in memory of Jamie and we are aware that many of his supporters are planning to do so. We have set up a new page in memory of this wonderful little boy called ‘Jamie’s Lasting Legacy’. Please click here to see his new page.

 

This fundraising page will also remain open for the time being.

 

From Jamie’s family and the team at the Neuroblastoma Alliance UK, thank you for your support for Jamie’s appeal and for all the messages of support for Jamie and his family.

 

What is neuroblastoma?

Neuroblastoma is a very aggressive childhood cancer.   

 

·          2 children are diagnosed with neuroblastoma every week in the UK

 

·          1 of those babies and children will have high risk disease, where the cancer has spread to other parts of their body like the liver, bones and bone marrow, lungs, skin and brain

 

·          It causes 15% of childhood cancer deaths 

 

·          It is the commonest ‘solid’ cancer diagnosed in babies and children

 

·          The long term survival rate for babies and children with high risk neuroblastoma is less than 40%—half the average survival rate for other childhood cancers

 

Treatments

Children with high risk neuroblastoma can receive chemotherapy, surgery, radiation therapy, stem cell transplant and immunotherapy. Different clinical treatments are being trialled in Europe—including the UK—and the United States.

 

Not all children can join UK trials to get the potentially life-saving treatment they need. Some of the trials, especially for relapsed neuroblastoma, are only available abroad.

 

About the Neuroblastoma Alliance UK

We believe that UK children with neuroblastoma should have access to the best clinical treatment available to them locally or internationally. Taking into consideration the individual nature of the disease, the best treatments available may differ for each child.

 

If children cannot join a British trial, or need a clinical treatment that is only available outside the UK, they may have to travel abroad to give them the best chance of beating the disease.

 

Children’s treatment options should not be limited by where they live.

 

What we do

The Neuroblastoma Alliance UK helps children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad.  

 

We need your help to fund children’s treatment costs, to support families and to pay for research into the disease.

 

Find out more

We welcome any questions you may have about our work. Please call us any time on telephone 020 8203 0100 and 020 8202 9065 or email us on info@nballiance.org.uk. You can also contact us through our website.

 

My charity

Neuroblastoma Children's Cancer Alliance

Neuroblastoma Children's Cancer Alliance

Charity Registration No. 1135601

We help children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad. We help with treatment costs, support families and fund research.

Donations 2704

smiley.png

Merry Christmas little man

Donation by Jackie Marmion on 14/12/12

£10.00

+ £2.50 Gift Aid

smileys.png

Get Well Soon x

Donation by LYNSEY MCMANUS BT on 14/12/12

£5.00

+ £1.25 Gift Aid

heart.png

Instead of sending christmas cards at work we've raised £30 for Jamies appeal in memory of Jaiden Worrall. Keep smiling Jamie xxx Medical HR at MYH

Donation by Rebecca Turner on 14/12/12

£30.00

+ £7.50 Gift Aid

Donation by Martha James on 14/12/12

£10.00

+ £2.50 Gift Aid

windmill2.png

Get well soon & have a Happy Christmas

Donation by David Smyth on 14/12/12

£5.00

+ £1.25 Gift Aid

Donation by Anonymous on 14/12/12

£10.00

heart.png

Dear Jamie, Vicky and John, this comes with lots and lots of love from all your friends at Lord Deramore's who are thinking of you constantly.

Donation by Christmas Cake Stall at Lord D's on 14/12/12

£330.00

Superman.png

God bless you Jamie, get well soon! Janet from York

Donation by Janet Cook on 13/12/12

£20.00

mobile-phone.png

Hope you raise lots more x

Donation by Clare South on 12/12/12

£10.00

+ £2.50 Gift Aid

trophy.png

Seven Glenmorangies. Stay with it Jamie

Donation by Maurice Hall on 12/12/12

£21.00

+ £5.25 Gift Aid

Jumping.png

Happy Day Jamie. Steve from Derby.

Donation by STEPHEN BARLOW on 12/12/12

£20.00

+ £5.00 Gift Aid

smileys.png

Wishing you all the best to get better

Donation by Alison Craig on 11/12/12

£20.00

+ £5.00 Gift Aid

Donation by Anonymous on 11/12/12

£2.00

+ £0.50 Gift Aid

heart.png

It's not so much 'cos I don't have a job but I'm sure it will make a difference!! God bless Jamie and his family!!

Donation by Sue on 11/12/12

smileys.png

Donation by Leigh Wilson on 11/12/12

£50.00

+ £12.50 Gift Aid

mobile-phone.png

Donation by Hilary Hughes on 11/12/12

£10.00

+ £2.50 Gift Aid

text donation

Donation by Anonymous on 11/12/12

£10.00

windmill2.png

From the motocross community. Get well

Donation by #66 on 10/12/12

$16.05

thumbsUp.png

For such a brave boy and family sending you loads of good wishes and prayers, stay strong xx

Donation by Valerie Cooke on 10/12/12

£10.00

trophy.png

Sending you all our very best to a very special and such a strong young man.

Donation by The Spruyt family on 09/12/12

heart.png

From a friend of Claire's; wishing you all the very best. Xx

Donation by Katie on 08/12/12

£5.00

+ £1.25 Gift Aid

Donation by Joan Rhind on 08/12/12

£200.00

+ £50.00 Gift Aid

thumbsUp.png

Thinking of you all, keep strong Jamie. In memory of jaiden worrall, lots of love xxxxxx

Donation by Rachael Charles on 08/12/12

£10.00

+ £2.50 Gift Aid

Superman.png

Our prayers go out to Jamie and his family. Get well soon .

Donation by Pupovic Family on 08/12/12

$16.06

Donation by Alexandra Barrett on 08/12/12

$10.00

Donation summary

  • * Online donations$138,474.78
  • Offline donations$74,276.49
  • Text donations$3,430.78
  • Total raised$216,182.05
  • Gift Aid$24,871.73

* Charities pay a small fee for our service. Find out how much it is and what we do for it.