My story

 

It is with immense sadness that we report the news that Jamie Inglis lost his battle against neuroblastoma on 15 January 2013.

 

He passed away peacefully in hospital with his parents by his side. Jamie’s appeal was raising funds to cover his treatment costs in Germany. After these costs have been met, Jamie’s mum and Dad have asked that any remaining money is allocated to help other children having neuroblastoma treatment now and to fund research into this frighteningly aggressive cancer.

 

You can still fundraise in memory of Jamie and we are aware that many of his supporters are planning to do so. We have set up a new page in memory of this wonderful little boy called ‘Jamie’s Lasting Legacy’. Please click here to see his new page.

 

This fundraising page will also remain open for the time being.

 

From Jamie’s family and the team at the Neuroblastoma Alliance UK, thank you for your support for Jamie’s appeal and for all the messages of support for Jamie and his family.

 

What is neuroblastoma?

Neuroblastoma is a very aggressive childhood cancer.   

 

·          2 children are diagnosed with neuroblastoma every week in the UK

 

·          1 of those babies and children will have high risk disease, where the cancer has spread to other parts of their body like the liver, bones and bone marrow, lungs, skin and brain

 

·          It causes 15% of childhood cancer deaths 

 

·          It is the commonest ‘solid’ cancer diagnosed in babies and children

 

·          The long term survival rate for babies and children with high risk neuroblastoma is less than 40%—half the average survival rate for other childhood cancers

 

Treatments

Children with high risk neuroblastoma can receive chemotherapy, surgery, radiation therapy, stem cell transplant and immunotherapy. Different clinical treatments are being trialled in Europe—including the UK—and the United States.

 

Not all children can join UK trials to get the potentially life-saving treatment they need. Some of the trials, especially for relapsed neuroblastoma, are only available abroad.

 

About the Neuroblastoma Alliance UK

We believe that UK children with neuroblastoma should have access to the best clinical treatment available to them locally or internationally. Taking into consideration the individual nature of the disease, the best treatments available may differ for each child.

 

If children cannot join a British trial, or need a clinical treatment that is only available outside the UK, they may have to travel abroad to give them the best chance of beating the disease.

 

Children’s treatment options should not be limited by where they live.

 

What we do

The Neuroblastoma Alliance UK helps children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad.  

 

We need your help to fund children’s treatment costs, to support families and to pay for research into the disease.

 

Find out more

We welcome any questions you may have about our work. Please call us any time on telephone 020 8203 0100 and 020 8202 9065 or email us on info@nballiance.org.uk. You can also contact us through our website.

 

My gallery 5

My Team

Team photo
Jamie's NCCA UK Team

My company

My charity

Neuroblastoma Children's Cancer Alliance

Neuroblastoma Children's Cancer Alliance

Charity Registration No. 1135601

We help children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad. We help with treatment costs, support families and fund research.

Donations 2704

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I do not know you personally but have followed your page on Facebook and was so sad that you lost Jamie xxx

Donation by Clare Bell on 22/01/13

£10.00

+ £2.50 Gift Aid

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Donation by Anonymous on 22/01/13

Donation by Kizzy Sheppard on 22/01/13

£20.00

+ £5.00 Gift Aid

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For Jamie. Xxx

Donation by Annette Parker on 22/01/13

£10.00

+ £2.50 Gift Aid

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Wishing you peace and strength

Donation by Lucy on 21/01/13

£10.00

+ £2.50 Gift Aid

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Donation by Anonymous on 21/01/13

£10.00

+ £2.50 Gift Aid

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I am so very for the loss of your beautiful little boy. Rest in peace, Jamie x

Donation by Rebecca Knowles on 21/01/13

£10.00

+ £2.50 Gift Aid

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Keep smiling from Heaven Jamie, be at peace. Love

Donation by Gabri on 21/01/13

£10.00

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i am so sorry for your loss, my thoughts are with you and your family, I wish we could find a cure for this horrible disease. xxx

Donation by Nicky on 20/01/13

£10.00

+ £2.50 Gift Aid

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I'm sorry for your loss. Thinking of you.

Donation by Pierre on 20/01/13

11,92 €

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God bless you!

Donation by Anonymous on 20/01/13

$10.00

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For a special friend and his family who changed our lives forever. Lots of love from @SmilesForJamie x x x

Donation by Jemima, Madeline & Felicity, Mum & Dad x on 20/01/13

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In memory of Jamie

Donation by Emma Watford on 20/01/13

£50.00

+ £12.50 Gift Aid

Donation by Anonymous on 19/01/13

£20.00

+ £5.00 Gift Aid

Donation by Anonymous on 18/01/13

£10.00

+ £2.50 Gift Aid

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God Bless you Jamie x

Donation by Elaine Smith on 18/01/13

£10.00

+ £2.50 Gift Aid

To help keep up the fight against this terrible disease

Donation by John McGowan on 18/01/13

£20.00

+ £5.00 Gift Aid

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Didn't know you personally but so touched by your story. Sleep peacefully little one. xx

Donation by Jess on 18/01/13

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Donation by Toni Utley on 18/01/13

£2.00

+ £0.50 Gift Aid

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Remembering Jamie always - what a smile :-)

Donation by Kerry Merriam on 17/01/13

Donation by Julia Thompson on 17/01/13

£10.00

+ £2.50 Gift Aid

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In tribute 2 a beautiful & unbelieveably brave little boy,Jamie u have touched my heart & soul,may u rest in eternal peace,all my luv,xxx

Donation by joanne kaye on 17/01/13

£10.00

+ £2.50 Gift Aid

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Giving a small donation is all I can do to express my sympathy.

Donation by Linda Montgomerie on 17/01/13

£10.00

+ £2.50 Gift Aid

I'm lost for words. I will dedicate my future fund raising in your memory Jamie. God Bless little man, Sleep Well. Mike, Carolyn and Ben...

Donation by Michael Atkins on 17/01/13

£25.00

+ £6.25 Gift Aid

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Donation by Anonymous on 17/01/13

£10.00

+ £2.50 Gift Aid

Donation summary

  • * Online donations£91,178.86
  • Offline donations£48,907.43
  • Text donations£2,259.00
  • Total raised£142,345.29
  • Gift Aid£16,376.82

* Charities pay a small fee for our service. Find out how much it is and what we do for it.