My story

 

It is with immense sadness that we report the news that Jamie Inglis lost his battle against neuroblastoma on 15 January 2013.

 

He passed away peacefully in hospital with his parents by his side. Jamie’s appeal was raising funds to cover his treatment costs in Germany. After these costs have been met, Jamie’s mum and Dad have asked that any remaining money is allocated to help other children having neuroblastoma treatment now and to fund research into this frighteningly aggressive cancer.

 

You can still fundraise in memory of Jamie and we are aware that many of his supporters are planning to do so. We have set up a new page in memory of this wonderful little boy called ‘Jamie’s Lasting Legacy’. Please click here to see his new page.

 

This fundraising page will also remain open for the time being.

 

From Jamie’s family and the team at the Neuroblastoma Alliance UK, thank you for your support for Jamie’s appeal and for all the messages of support for Jamie and his family.

 

What is neuroblastoma?

Neuroblastoma is a very aggressive childhood cancer.   

 

·          2 children are diagnosed with neuroblastoma every week in the UK

 

·          1 of those babies and children will have high risk disease, where the cancer has spread to other parts of their body like the liver, bones and bone marrow, lungs, skin and brain

 

·          It causes 15% of childhood cancer deaths 

 

·          It is the commonest ‘solid’ cancer diagnosed in babies and children

 

·          The long term survival rate for babies and children with high risk neuroblastoma is less than 40%—half the average survival rate for other childhood cancers

 

Treatments

Children with high risk neuroblastoma can receive chemotherapy, surgery, radiation therapy, stem cell transplant and immunotherapy. Different clinical treatments are being trialled in Europe—including the UK—and the United States.

 

Not all children can join UK trials to get the potentially life-saving treatment they need. Some of the trials, especially for relapsed neuroblastoma, are only available abroad.

 

About the Neuroblastoma Alliance UK

We believe that UK children with neuroblastoma should have access to the best clinical treatment available to them locally or internationally. Taking into consideration the individual nature of the disease, the best treatments available may differ for each child.

 

If children cannot join a British trial, or need a clinical treatment that is only available outside the UK, they may have to travel abroad to give them the best chance of beating the disease.

 

Children’s treatment options should not be limited by where they live.

 

What we do

The Neuroblastoma Alliance UK helps children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad.  

 

We need your help to fund children’s treatment costs, to support families and to pay for research into the disease.

 

Find out more

We welcome any questions you may have about our work. Please call us any time on telephone 020 8203 0100 and 020 8202 9065 or email us on info@nballiance.org.uk. You can also contact us through our website.

 

My charity

Neuroblastoma Children's Cancer Alliance

Neuroblastoma Children's Cancer Alliance

Charity Registration No. 1135601

We help children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad. We help with treatment costs, support families and fund research.

Donations 2704

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What a brave boy you are Jamie and what a beautiful smile! Loads and Loads of good wishes are coming your way from us xx

Donation by Karen Clarke on 22/10/12

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It makes me realise how very lucky I am to have two healthy little grandsons. I wish Jamie and his family all the luck in the world.

Donation by Lynne Hart on 22/10/12

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Best wishes for the future

Donation by Anon on 22/10/12

£5.00

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best wishes jamie

Donation by michael warnock on 22/10/12

£25.00

+ £6.25 Gift Aid

Donation by john selby on 22/10/12

£10.00

+ £2.50 Gift Aid

Donation by Mavis Clapton on 22/10/12

£20.00

+ £5.00 Gift Aid

text donation

Donation by Anonymous on 22/10/12

£5.00

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All the very best.

Donation by Roslyn Hards on 22/10/12

£10.00

+ £2.50 Gift Aid

Donation by Maureen Smart on 22/10/12

£10.00

+ £2.50 Gift Aid

Donation by Michele Jenkinson on 22/10/12

£20.00

+ £5.00 Gift Aid

Donation by Anne Gullett on 22/10/12

£10.00

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All our love to you all.Wishing you inner peace and healing. Peter and Marion

Donation by Peter Hughes on 22/10/12

£50.00

Donation by michael hilditch on 22/10/12

£10.00

+ £2.50 Gift Aid

Donation by John Davies on 21/10/12

£10.00

+ £2.50 Gift Aid

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hi,best wishes to you all. sorry i couldn't afford to give any more,but all the very best of luck with the treatment. adam

Donation by adam rayner on 21/10/12

£5.00

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Good luck and God bless.

Donation by Elfie Barnett on 21/10/12

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Good luck Jamie! Sas Dady keeps us all updated on your story.

Donation by Helen Pring on 21/10/12

£50.00

+ £12.50 Gift Aid

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With love to a brave little man and your family,

Donation by Jayne Paddock on 21/10/12

Donation by Sandra Stephens on 21/10/12

£25.00

+ £6.25 Gift Aid

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Wishing you the best

Donation by carol whittaker on 21/10/12

£4.00

+ £1.00 Gift Aid

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Wishing you well, Good luck

Donation by Marc Walker on 21/10/12

£20.00

+ £5.00 Gift Aid

Donation by Jennifer Fullard on 21/10/12

£10.00

+ £2.50 Gift Aid

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Donation by Anonymous on 21/10/12

£5.00

+ £1.25 Gift Aid

Donation by Anonymous on 21/10/12

£25.00

+ £6.25 Gift Aid

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Wishing you well with much lovexx

Donation by Anonymous on 21/10/12

£20.00

+ £5.00 Gift Aid

Donation summary

  • * Online donations£91,178.86
  • Offline donations£48,907.43
  • Text donations£2,259.00
  • Total raised£142,345.29
  • Gift Aid£16,376.82

* Charities pay a small fee for our service. Find out how much it is and what we do for it.