My story

 

It is with immense sadness that we report the news that Jamie Inglis lost his battle against neuroblastoma on 15 January 2013.

 

He passed away peacefully in hospital with his parents by his side. Jamie’s appeal was raising funds to cover his treatment costs in Germany. After these costs have been met, Jamie’s mum and Dad have asked that any remaining money is allocated to help other children having neuroblastoma treatment now and to fund research into this frighteningly aggressive cancer.

 

You can still fundraise in memory of Jamie and we are aware that many of his supporters are planning to do so. We have set up a new page in memory of this wonderful little boy called ‘Jamie’s Lasting Legacy’. Please click here to see his new page.

 

This fundraising page will also remain open for the time being.

 

From Jamie’s family and the team at the Neuroblastoma Alliance UK, thank you for your support for Jamie’s appeal and for all the messages of support for Jamie and his family.

 

What is neuroblastoma?

Neuroblastoma is a very aggressive childhood cancer.   

 

·          2 children are diagnosed with neuroblastoma every week in the UK

 

·          1 of those babies and children will have high risk disease, where the cancer has spread to other parts of their body like the liver, bones and bone marrow, lungs, skin and brain

 

·          It causes 15% of childhood cancer deaths 

 

·          It is the commonest ‘solid’ cancer diagnosed in babies and children

 

·          The long term survival rate for babies and children with high risk neuroblastoma is less than 40%—half the average survival rate for other childhood cancers

 

Treatments

Children with high risk neuroblastoma can receive chemotherapy, surgery, radiation therapy, stem cell transplant and immunotherapy. Different clinical treatments are being trialled in Europe—including the UK—and the United States.

 

Not all children can join UK trials to get the potentially life-saving treatment they need. Some of the trials, especially for relapsed neuroblastoma, are only available abroad.

 

About the Neuroblastoma Alliance UK

We believe that UK children with neuroblastoma should have access to the best clinical treatment available to them locally or internationally. Taking into consideration the individual nature of the disease, the best treatments available may differ for each child.

 

If children cannot join a British trial, or need a clinical treatment that is only available outside the UK, they may have to travel abroad to give them the best chance of beating the disease.

 

Children’s treatment options should not be limited by where they live.

 

What we do

The Neuroblastoma Alliance UK helps children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad.  

 

We need your help to fund children’s treatment costs, to support families and to pay for research into the disease.

 

Find out more

We welcome any questions you may have about our work. Please call us any time on telephone 020 8203 0100 and 020 8202 9065 or email us on info@nballiance.org.uk. You can also contact us through our website.

 

My gallery 5

My Team

Team photo
Jamie Inglis Appeal

My company

My charity

Neuroblastoma Children's Cancer Alliance

Neuroblastoma Children's Cancer Alliance

Charity Registration No. 1135601

We help children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad. We help with treatment costs, support families and fund research.

Donations 2704

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Donation by Anonymous on 17/01/13

£5.00

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RIP sleep tight such a brave little boy! X

Donation by Charley Nuttall on 17/01/13

£15.00

+ £3.75 Gift Aid

Donation by Gregory Hagerman on 17/01/13

$12.00

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Rest in peace Jamie. Hopefully someday a cure will be found others will not suffer xxx

Donation by Kitty, Molly, Lucy, Karen and Tim on 17/01/13

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rest in peace little fella and lets hope they make a really difference in treating this dreadfull disease x

Donation by michelle nunn on 17/01/13

£5.00

+ £1.25 Gift Aid

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Donation by Anonymous on 17/01/13

£5.00

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For Jamie & all the joy & happiness he gave and with the very deepest respect & admiration for John & Vicky’s courage, dignity & love for their son

Donation by Lily (yr 6) & family on 17/01/13

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Rest in peace darling boy xx

Donation by victoria chudleigh on 17/01/13

£10.00

+ £2.50 Gift Aid

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Donation by Anonymous on 17/01/13

£89.35

+ £22.34 Gift Aid

text donation

Donation by Anonymous on 17/01/13

£1.00

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In memory of Jamie. I didn't know you or your family, but have been so touched by your brave little life. You are safe with the angels now xxx

Donation by Julie Evans on 17/01/13

£10.00

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Rest in peace little Jamie x

Donation by Lisa Bowden on 17/01/13

Donation by Kerry Goose on 17/01/13

£10.00

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Donation by sarah Bentley on 17/01/13

£2.00

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Not much but given with love and respect to jamie

Donation by Cattrinna Turner on 17/01/13

£5.00

+ £1.25 Gift Aid

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RIP Brave Boy, Sleep Safely with the Angelsxxxxxxxxx

Donation by Maralyn Newby on 17/01/13

£10.00

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RIP Little Soldier.

Donation by stewart bell on 17/01/13

£20.00

+ £5.00 Gift Aid

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this is the donation from faces by michelle. the money was raised at the smiles for jamie days in hohne and fallingbostel.

Donation by michelle pritchardprice on 17/01/13

440,00 €

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A beautiful boy....puts things in perspective for all of us.

Donation by Karl Budzul on 17/01/13

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I've been following your story and although I didn't know you touched my heart. Rip beautiful.

Donation by Laura Piercey on 16/01/13

£10.00

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Donation by Chris Bamber on 16/01/13

£20.00

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In tribute to a beautiful, brave little boy and his truly remarkable parents x

Donation by Kate Popplewell on 16/01/13

£50.00

Donation by Samantha richardson on 16/01/13

£79.90

+ £19.98 Gift Aid

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in memory of a brave wee man.

Donation by Joan Rhind on 16/01/13

text donation

Donation by Anonymous on 16/01/13

£10.00

Donation summary

  • * Online donations£91,178.86
  • Offline donations£48,907.43
  • Text donations£2,259.00
  • Total raised£142,345.29
  • Gift Aid£16,376.82

* Charities pay a small fee for our service. Find out how much it is and what we do for it.