My story

 

It is with immense sadness that we report the news that Jamie Inglis lost his battle against neuroblastoma on 15 January 2013.

 

He passed away peacefully in hospital with his parents by his side. Jamie’s appeal was raising funds to cover his treatment costs in Germany. After these costs have been met, Jamie’s mum and Dad have asked that any remaining money is allocated to help other children having neuroblastoma treatment now and to fund research into this frighteningly aggressive cancer.

 

You can still fundraise in memory of Jamie and we are aware that many of his supporters are planning to do so. We have set up a new page in memory of this wonderful little boy called ‘Jamie’s Lasting Legacy’. Please click here to see his new page.

 

This fundraising page will also remain open for the time being.

 

From Jamie’s family and the team at the Neuroblastoma Alliance UK, thank you for your support for Jamie’s appeal and for all the messages of support for Jamie and his family.

 

What is neuroblastoma?

Neuroblastoma is a very aggressive childhood cancer.   

 

·          2 children are diagnosed with neuroblastoma every week in the UK

 

·          1 of those babies and children will have high risk disease, where the cancer has spread to other parts of their body like the liver, bones and bone marrow, lungs, skin and brain

 

·          It causes 15% of childhood cancer deaths 

 

·          It is the commonest ‘solid’ cancer diagnosed in babies and children

 

·          The long term survival rate for babies and children with high risk neuroblastoma is less than 40%—half the average survival rate for other childhood cancers

 

Treatments

Children with high risk neuroblastoma can receive chemotherapy, surgery, radiation therapy, stem cell transplant and immunotherapy. Different clinical treatments are being trialled in Europe—including the UK—and the United States.

 

Not all children can join UK trials to get the potentially life-saving treatment they need. Some of the trials, especially for relapsed neuroblastoma, are only available abroad.

 

About the Neuroblastoma Alliance UK

We believe that UK children with neuroblastoma should have access to the best clinical treatment available to them locally or internationally. Taking into consideration the individual nature of the disease, the best treatments available may differ for each child.

 

If children cannot join a British trial, or need a clinical treatment that is only available outside the UK, they may have to travel abroad to give them the best chance of beating the disease.

 

Children’s treatment options should not be limited by where they live.

 

What we do

The Neuroblastoma Alliance UK helps children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad.  

 

We need your help to fund children’s treatment costs, to support families and to pay for research into the disease.

 

Find out more

We welcome any questions you may have about our work. Please call us any time on telephone 020 8203 0100 and 020 8202 9065 or email us on info@nballiance.org.uk. You can also contact us through our website.

 

My gallery 5

My Team

Team photo
Jamie's NCCA UK Team

My company

My charity

Neuroblastoma Children's Cancer Alliance

Neuroblastoma Children's Cancer Alliance

Charity Registration No. 1135601

We help children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad. We help with treatment costs, support families and fund research.

Donations 2704

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So sorry to hear the news. Such a brave lad!

Donation by Andrew on 16/01/13

£10.00

+ £2.50 Gift Aid

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Thinking of you and your family x x

Donation by Jane Kendal on 15/01/13

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This is the first lot of money raised from auction for Jamie, hope there is lots more to come xxx

Donation by Natalie and Sharon Davy on 15/01/13

£100.00

+ £25.00 Gift Aid

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Happy Day Jamie Steve from Derby.

Donation by STEPHEN BARLOW on 15/01/13

£50.00

+ £12.50 Gift Aid

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Donation by Janice Guild on 15/01/13

Donation by Ron Lovatt on 15/01/13

£10.00

+ £2.50 Gift Aid

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Thinking of you Jamie. x x x

Donation by amy magee on 14/01/13

£20.00

+ £5.00 Gift Aid

text donation

Donation by Anonymous on 13/01/13

£10.00

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This donation is from all the kind people within BFG who have given me items. We all wish you the very best and look forward to seeing a better Jamie.

Donation by Kevin Cooney on 13/01/13

£200.00

+ £50.00 Gift Aid

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For Jamie xxx

Donation by Jacqueline Tymon on 12/01/13

£1.00

+ £0.25 Gift Aid

Donation by Michelle Scott on 12/01/13

£50.00

Donation by Susan Johnson on 12/01/13

£50.00

+ £12.50 Gift Aid

Donation by Kate Edge on 11/01/13

£500.00

+ £125.00 Gift Aid

Donation by Anonymous on 10/01/13

£20.00

+ £5.00 Gift Aid

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loads of smiles heading your way.

Donation by Helen Ross on 08/01/13

£20.00

+ £5.00 Gift Aid

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Saw this on the LUFC. Hope you raise the funds and beat it a second time.

Donation by Jason Duckett on 07/01/13

£10.00

+ £2.50 Gift Aid

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Saw on LUFC, keep smiling

Donation by Anonymous on 07/01/13

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Happy New Year Jamie. Steve from Derby.

Donation by STEPHEN BARLOW on 07/01/13

£50.00

+ £12.50 Gift Aid

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For brave Jamie, I saw your appeal through LUFC website. Keep fighting honey xx

Donation by ann proud on 06/01/13

£20.00

+ £5.00 Gift Aid

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Keep fighting young un. Mot.

Donation by David Gale on 06/01/13

£10.00

+ £2.50 Gift Aid

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To Jamie Keep fighting - superboy!

Donation by Karen Spruyt on 06/01/13

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For jamie ingles x

Donation by Tammy BankaTammyB on 06/01/13

£10.00

+ £2.50 Gift Aid

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Saw your touching story on LUFC website. Get well soon!

Donation by J Fuller on 06/01/13

£20.00

+ £5.00 Gift Aid

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Seen your story on Leeds United website. Was touched. Keep on fighting mate! Best wishes from Australia

Donation by Sean Williamson on 06/01/13

$30.74

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Keep fighting dude!

Donation by Danny on 06/01/13

£5.00

+ £1.25 Gift Aid

Donation summary

  • * Online donations£91,178.86
  • Offline donations£48,907.43
  • Text donations£2,259.00
  • Total raised£142,345.29
  • Gift Aid£16,376.82

* Charities pay a small fee for our service. Find out how much it is and what we do for it.