My story

 

It is with immense sadness that we report the news that Jamie Inglis lost his battle against neuroblastoma on 15 January 2013.

 

He passed away peacefully in hospital with his parents by his side. Jamie’s appeal was raising funds to cover his treatment costs in Germany. After these costs have been met, Jamie’s mum and Dad have asked that any remaining money is allocated to help other children having neuroblastoma treatment now and to fund research into this frighteningly aggressive cancer.

 

You can still fundraise in memory of Jamie and we are aware that many of his supporters are planning to do so. We have set up a new page in memory of this wonderful little boy called ‘Jamie’s Lasting Legacy’. Please click here to see his new page.

 

This fundraising page will also remain open for the time being.

 

From Jamie’s family and the team at the Neuroblastoma Alliance UK, thank you for your support for Jamie’s appeal and for all the messages of support for Jamie and his family.

 

What is neuroblastoma?

Neuroblastoma is a very aggressive childhood cancer.   

 

·          2 children are diagnosed with neuroblastoma every week in the UK

 

·          1 of those babies and children will have high risk disease, where the cancer has spread to other parts of their body like the liver, bones and bone marrow, lungs, skin and brain

 

·          It causes 15% of childhood cancer deaths 

 

·          It is the commonest ‘solid’ cancer diagnosed in babies and children

 

·          The long term survival rate for babies and children with high risk neuroblastoma is less than 40%—half the average survival rate for other childhood cancers

 

Treatments

Children with high risk neuroblastoma can receive chemotherapy, surgery, radiation therapy, stem cell transplant and immunotherapy. Different clinical treatments are being trialled in Europe—including the UK—and the United States.

 

Not all children can join UK trials to get the potentially life-saving treatment they need. Some of the trials, especially for relapsed neuroblastoma, are only available abroad.

 

About the Neuroblastoma Alliance UK

We believe that UK children with neuroblastoma should have access to the best clinical treatment available to them locally or internationally. Taking into consideration the individual nature of the disease, the best treatments available may differ for each child.

 

If children cannot join a British trial, or need a clinical treatment that is only available outside the UK, they may have to travel abroad to give them the best chance of beating the disease.

 

Children’s treatment options should not be limited by where they live.

 

What we do

The Neuroblastoma Alliance UK helps children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad.  

 

We need your help to fund children’s treatment costs, to support families and to pay for research into the disease.

 

Find out more

We welcome any questions you may have about our work. Please call us any time on telephone 020 8203 0100 and 020 8202 9065 or email us on info@nballiance.org.uk. You can also contact us through our website.

 

My gallery 5

My Team

Team photo
Jamie Inglis Appeal

My company

My charity

Neuroblastoma Children's Cancer Alliance

Neuroblastoma Children's Cancer Alliance

Charity Registration No. 1135601

We help children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad. We help with treatment costs, support families and fund research.

Donations 2704

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Get better baby :)

Donation by Dajana Grbic on 27/12/12

$32.04

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Get well Jamie, your pal Vanessa Riddle brought me here. Good to have friends like that in time of need, you're blessed.

Donation by Michael Harris on 27/12/12

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All the best for 2013. We have everything crossed. X

Donation by Robert Duncan on 27/12/12

£10.00

+ £2.50 Gift Aid

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Jamie, Thinking of you and your family. Get well soon. Lots of love xxx

Donation by Tracy Gregory on 27/12/12

£5.00

+ £1.25 Gift Aid

text donation

Donation by Anonymous on 27/12/12

£5.00

Donation by Terry Snook on 27/12/12

$16.12

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Good luck. X

Donation by Sally Bukevicius on 27/12/12

£10.00

+ £2.50 Gift Aid

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Donation by Jody Boore on 27/12/12

£3.00

+ £0.75 Gift Aid

text donation

Donation by Anonymous on 27/12/12

£10.00

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Lots of love from NZ

Donation by Olivia Sparkes on 27/12/12

$31.12

text donation

Donation by Anonymous on 26/12/12

£10.00

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Hope you get better soon.

Donation by Roger Garrett on 25/12/12

£10.00

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Hang in there and God Bless!

Donation by Anonymous on 25/12/12

$40.00

Donation by Anonymous on 24/12/12

£10.00

+ £2.50 Gift Aid

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Hang in there, Jamie! Keep fighting.

Donation by Gregory Hagerman on 24/12/12

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Thanks for letting me help.

Donation by Joseph Bustamante on 24/12/12

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Hope the wee man improves soon and you all manage to have a good Christmas. x x

Donation by Gillian Hudson on 24/12/12

£10.00

+ £2.50 Gift Aid

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Keep fighting brave little man xxxxxxxxx

Donation by Wendy Querry on 24/12/12

£10.00

+ £2.50 Gift Aid

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Sorry I couldn't give more, bu I hope y'all have a happy christmas anyway :)

Donation by Sacha Jones on 24/12/12

£10.00

+ £2.50 Gift Aid

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Hope for the best

Donation by Anonymous on 24/12/12

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Happy Xmas Jamie and family. May the New Year bring you all you've ever wanted. Best wishes,

Donation by David on 24/12/12

£30.00

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Donation by Anon on 24/12/12

£100.00

+ £25.00 Gift Aid

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From max and maddie Abigail's friends dogs thanks for the tummy tickles

Donation by Claire and Craig on 23/12/12

£20.00

Donation by Jeff Jordan on 22/12/12

£10.00

+ £2.50 Gift Aid

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From the Reindeer for Jamie! We sold 200 tiny bags of Reindeer food, thanks to everyone who bought some :)

Donation by Karen Williams on 21/12/12

£103.92

+ £25.98 Gift Aid

Donation summary

  • * Online donations£91,178.86
  • Offline donations£48,907.43
  • Text donations£2,259.00
  • Total raised£142,345.29
  • Gift Aid£16,376.82

* Charities pay a small fee for our service. Find out how much it is and what we do for it.