My story

 

It is with immense sadness that we report the news that Jamie Inglis lost his battle against neuroblastoma on 15 January 2013.

 

He passed away peacefully in hospital with his parents by his side. Jamie’s appeal was raising funds to cover his treatment costs in Germany. After these costs have been met, Jamie’s mum and Dad have asked that any remaining money is allocated to help other children having neuroblastoma treatment now and to fund research into this frighteningly aggressive cancer.

 

You can still fundraise in memory of Jamie and we are aware that many of his supporters are planning to do so. We have set up a new page in memory of this wonderful little boy called ‘Jamie’s Lasting Legacy’. Please click here to see his new page.

 

This fundraising page will also remain open for the time being.

 

From Jamie’s family and the team at the Neuroblastoma Alliance UK, thank you for your support for Jamie’s appeal and for all the messages of support for Jamie and his family.

 

What is neuroblastoma?

Neuroblastoma is a very aggressive childhood cancer.   

 

·          2 children are diagnosed with neuroblastoma every week in the UK

 

·          1 of those babies and children will have high risk disease, where the cancer has spread to other parts of their body like the liver, bones and bone marrow, lungs, skin and brain

 

·          It causes 15% of childhood cancer deaths 

 

·          It is the commonest ‘solid’ cancer diagnosed in babies and children

 

·          The long term survival rate for babies and children with high risk neuroblastoma is less than 40%—half the average survival rate for other childhood cancers

 

Treatments

Children with high risk neuroblastoma can receive chemotherapy, surgery, radiation therapy, stem cell transplant and immunotherapy. Different clinical treatments are being trialled in Europe—including the UK—and the United States.

 

Not all children can join UK trials to get the potentially life-saving treatment they need. Some of the trials, especially for relapsed neuroblastoma, are only available abroad.

 

About the Neuroblastoma Alliance UK

We believe that UK children with neuroblastoma should have access to the best clinical treatment available to them locally or internationally. Taking into consideration the individual nature of the disease, the best treatments available may differ for each child.

 

If children cannot join a British trial, or need a clinical treatment that is only available outside the UK, they may have to travel abroad to give them the best chance of beating the disease.

 

Children’s treatment options should not be limited by where they live.

 

What we do

The Neuroblastoma Alliance UK helps children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad.  

 

We need your help to fund children’s treatment costs, to support families and to pay for research into the disease.

 

Find out more

We welcome any questions you may have about our work. Please call us any time on telephone 020 8203 0100 and 020 8202 9065 or email us on info@nballiance.org.uk. You can also contact us through our website.

 

My gallery 5

My Team

Team photo
Jamie Inglis Appeal

My company

My charity

Neuroblastoma Children's Cancer Alliance

Neuroblastoma Children's Cancer Alliance

Charity Registration No. 1135601

We help children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad. We help with treatment costs, support families and fund research.

Donations 2704

Have a wonderful Christmas little man. This is my Christmas card to all my family and friends. x

Donation by Angela Flintham on 21/12/12

£30.00

+ £7.50 Gift Aid

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Keep going Power Ranger Jamie, you truly are an amazing, inspirational little chap. wishing you and your family and amazing Christmas xx

Donation by Julia Strutt & all the staff at Unipart on 21/12/12

£519.00

+ £129.75 Gift Aid

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Merry Christmas Jamie Steve from Derby.

Donation by STEPHEN BARLOW on 21/12/12

£40.00

+ £10.00 Gift Aid

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Keep fighting little man. The World is with you xxx

Donation by Dom Hill on 21/12/12

£10.00

+ £2.50 Gift Aid

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Wishing Jamie and his family all the best. Love Caroline Smith xx

Donation by Caroline Smith on 21/12/12

£10.00

+ £2.50 Gift Aid

Donation by Christine Cook on 20/12/12

£20.00

+ £5.00 Gift Aid

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A special Christmas donation to help a very special little man and his family. XXXXXX

Donation by Jane King on 20/12/12

£200.00

+ £50.00 Gift Aid

text donation

Donation by Anonymous on 20/12/12

£10.00

I read your posts everyday and am praying for you from Texas in the USA. Have a great holiday and Keep Jamie Smiling!!! :-)

Donation by Becky Kalban on 19/12/12

$16.24

Donation by Anonymous on 19/12/12

£5.00

+ £1.25 Gift Aid

Donation by Anonymous on 19/12/12

£20.00

+ £5.00 Gift Aid

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Keep fighting Jamie & Merry Christmas xx

Donation by karen day on 19/12/12

£100.00

+ £25.00 Gift Aid

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Thinking of you all. Keep strong x

Donation by Vicky & andrew on 19/12/12

£20.00

+ £5.00 Gift Aid

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Praying for a full recovery

Donation by Glenise & Peter on 19/12/12

£25.00

+ £6.25 Gift Aid

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Donation by Anonymous on 19/12/12

Keep fighting Jamie. We want to see you smile. <3

Donation by Gabry on 19/12/12

£15.00

Donation by Carole Marshall on 19/12/12

£10.00

+ £2.50 Gift Aid

Donation by Brian Colton on 19/12/12

£20.00

+ £5.00 Gift Aid

Donation by Lauren Partington on 19/12/12

£50.00

+ £12.50 Gift Aid

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Donation by Andy Rowe on 19/12/12

£10.00

+ £2.50 Gift Aid

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This donation is in the name of Tina Tranauskas to keep Jamie smiling!

Donation by Angela Amarhanov on 19/12/12

$25.00

Donation by Anonymous on 18/12/12

£20.00

+ £5.00 Gift Aid

Donation by Chris Brown on 18/12/12

£20.00

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Funds raised by kids from Deramore's carol singing for you last night in Heslington. Lots of hugs coming your way from everyone here xxx

Donation by Isabel Jagoe on 18/12/12

£130.00

+ £32.50 Gift Aid

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Good luck little Jamie. Thinking of you and your family at this difficult time.

Donation by Kim Spence on 18/12/12

£10.00

+ £2.50 Gift Aid

Donation summary

  • * Online donations£91,178.86
  • Offline donations£48,907.43
  • Text donations£2,259.00
  • Total raised£142,345.29
  • Gift Aid£16,376.82

* Charities pay a small fee for our service. Find out how much it is and what we do for it.