I’m running the London Marathon on 26th April 2009 and to run without a cause, wouldn't be worth the effort in my book.
So, after careful deliberation I have chosen to run for MGA UK. This was an easy choice for me, as my 8 year old Daughter suffers with 'CMS' (a rarer form of MYASTHENIA GRAVIS). It was at its worst when she suffered 2 very distressing episodes; both resulted with stays in INTENSIVE CARE (at just 15 months & then 4 years old). In 2002, an overnight stay at the local hospital turned into a nightmare, as we nearly lost her when her breathing stopped, she was so weak, was rushed to GOSH, London & put on a ventilator. With lots of problems clearing colds since then, it was less than 3 years later that a very similar instance happened. Again, it started as a cold that wouldn't go away, she got weaker and weaker, became very limp, like a rag doll bless her.
Back then we were very distraught, how could a cough & cold make our Daughter so gravely ill? Yet, she was only diagnosed approx 2 years ago, through the help of a fantastic Paediatrician at our local hospital and a fabulous specialist Doctor in London (now at GOSH).
Thanks to them, our Daughter is now on 2 types of medication & has a Bi-pap machine to use when her breathing is badly affected - all these greatly help her through the difficulties she has with Myasthenia. She still has episodes, sometimes requiring overnight stays at hospital, but thank God no Intensive care visits since and though she still has numerous tests, physiotherapy and continual monitoring by specialist Doctors and Paediatricians, she always has a smile on her face, rising to every challenge life gives her.
Because of the condition she has, there are some things that she may never be able to do in the same way as another child of her age, such as running, cycling, and swimming. She tries so hard to make up for it though in so many other ways, and is such a caring girl whom we are all so proud of.
{For more about MG pls click here}> www.mgauk.org/mganews/0104-03.htm
Your donation will help MGA continue supporting myasthenics and their families & increase public and medical awareness. Funds raised also go towards Medical research. Indications from the MGA supported research centre in Oxford are that if funds can continue, a breakthrough may come in the not too distant future. Recent research has resulted in more understanding and better management of the disease, but there is still no cure.
Please give generously, so our Daughter and many others suffering with this condition can live better lives.
And please remember…. I WILL BE RUNNING FOR ALL MYASTHENIC SUFFERERS
Thank you so much for visiting this fundraising page and thank you in anticipation of your kindness.
Follow my BLOG: - http://jb-marathon.blogspot.com
