John Nelson is fundraising for The PBC Foundation

John Nelson's Fundraising Page

I did it!!

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Raising money for

The PBC Foundation

Charity Registration No. SC025619

The PBC Foundation is the only organisation in the UK providing free help, support and information to those affected by Primary Biliary Cirrhosis (PBC), a progressive autoimmune liver disease with no known cause or cure.

Thought to affect 20,000 people in the UK, including 1:400 women over the age of 40, PBC causes the progressive destruction of the bile ducts in the liver. Unlike better known liver conditions, PBC is not related to alcohol or drug use.

The PBC Foundation is committed to improving the quality of life for PBC sufferers by increasing their access to support and information. We also work to educate the general public and medical professionals about this still largely unknown disease and facilitate medical research into PBC.

We are a small charity with a national reach: our Edinburgh-based team of 5 staff and our UK-wide network of volunteers currently support 10,000 members.

The PBC Foundation runs a helpline, produces a quarterly magazine, and holds support groups throughout the UK. We also supply good quality patient information to our members through information packs on joining and annual conferences where some of the country’s top liver specialists give their free time to talk to people with PBC.

As more and more people are diagnosed with this condition, the demand for our services continues to increase. The PBC Foundation relies almost entirely on donations, not only to remain operational, but also to be able to initiate research projects.

Page owner

John Nelson

Page closes

18/01/2009

RSS

Raised: 36%

Target: £3,500.00
Raised so far: £1,253.50

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My story

Safety Guy throws away the rule book and takes on a risk!!

What an absolutely fantastic experience, staring down at the ground from a height of 3500 feet, waiting for the parachute to open!! Luckily my parachute did open but that was the boring part! You can view the evidnce by following the link http://www.bkpc.co.uk and clicking on the Hall of Fame tab, then scroll down

I didn't manage to raise as much money as I had hoped but, I'm confident many more people know about the dreadful disease.

Primary Biliary Cirrhosis (PBC) is an autoimmune disease which affects the liver. To put it in simple terms it is when the body turns against its own liver and starts attacking it from inside out. Not very nice!

Contrary to the stories that you may have heard, it’s not linked at all to alcohol or drug abuse and at present it has no known cause or cure.

The PBC Foundation concentrates on supporting sufferers and their families as, on many occasions, when the patients are diagnosed, the doctors know little about the condition and on several occasions patients have been told that they only have months to live. The charity does not offer medical advice but we do talk to sufferers and point them in the right direction for more information. For further information about this condition you can log onto the website at http://www.pbcfoundation.org.uk/

Primary Biliary Cirrhosis (PBC) is a slow, chronic liver disease which can cause progressive destruction of the bile ducts in the liver. The bile ducts are the channels through which bile flows. The body attacks the cells lining the bile ducts within the liver as if they are foreign to the body itself, i.e. attacking ones own cells. This damage causes poor drainage of bile acids, which leak outwards and damage the normal liver cells. This causes inflammation and scarring which may, after many years become extensive. This widespread damage and scarring is commonly called cirrhosis. The cause of PBC is at present unknown, like many liver diseases, it requires further considerable research.

In order to help this charity my aim is to raise as much money as possible for sufferers of PBC. You need to remember that this is a progressive autoimmune liver condition and it is a dreadful condition and the only hope is for a liver transplant when the time is right.

Thanks for visiting my fundraising page.

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: The PBC Foundation gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

So please continue to make donations!!

	Good Luck Mr!! Donation by Roona 29/08/08	£5.00 + £1.41 Gift Aid
	You go and enjoy it John! Donation by Mark Griffin 29/08/08	£10.00 + £2.82 Gift Aid
	Rather you than me mate - best of luck! Donation by Alan Brownlee 29/08/08	£10.00 + £2.82 Gift Aid
	YOU MUST BE MAD BUT GOOD LUCK! Donation by DAVID FIRTH 29/08/08	£10.00 + £2.82 Gift Aid
	Lots of Luck John, rather you than me. Hope the weather stays ok and you have a soft landing!! Donation by Rhona Cameron 28/08/08	£10.00 + £2.82 Gift Aid
	You have my admiration - Good Luck! Donation by Michael Lamontagne 28/08/08	£10.00 + £2.82 Gift Aid
	remember - dont look down! good luck and dont forget your back pack : ) Donation by Tirrian Sharp 28/08/08	£10.00 + £2.82 Gift Aid
	God luck John Donation by Peter Court 26/08/08	£10.00 + £2.82 Gift Aid
	never mind your golf clubs (sav), i want your cream pants, good luck mate Donation by antonio pillitteri 26/08/08	£10.00 + £2.82 Gift Aid
	Good luck John - rather you than me! Make sure you write a piece for us about the jump! Donation by Kellie Mundell 22/08/08	£10.00 + £2.82 Gift Aid
	All Man Utd supporters should been thrown out of planes from high altitude! Donation by pete ayers 22/08/08	£20.00 + £5.64 Gift Aid
	We want to see the photos as well!! Good luck!! Donation by Alina D. 21/08/08	£5.00 + £1.41 Gift Aid
	I'll double it if you do it without a parachute Donation by Bill Gale 21/08/08	£10.00 + £2.82 Gift Aid
	Its not the falling its the landing that needs perfection. WAH? Donation by Stephen chandler 21/08/08	£20.00 + £5.64 Gift Aid
	Good luck Donation by Jill Hempleman 21/08/08	£5.00 + £1.41 Gift Aid
	Go for it Baron von nelson aka the red devil Donation by Asa Dixon 21/08/08	£10.00 + £2.82 Gift Aid
	good luck John, not that you will need it!.. just remember to pul the cord!... Donation by Nigel 21/08/08	£20.00 + £5.64 Gift Aid
	Dont land Donation by Ian Arnott 21/08/08	£10.00 + £2.82 Gift Aid
	Very brave, good luck, definately want to see photos. Donation by Sally Boswell 21/08/08	£5.00 + £1.41 Gift Aid
	Best of luck John - remember to wear your brown trousers. Donation by Tom Brownlee 21/08/08	£25.00 + £7.05 Gift Aid
	Hi John I jumpt out of a plane last week, having said that it had landed. Good luck! Donation by Ken Parkes 20/08/08	£40.00 + £11.28 Gift Aid
	Good luck John, but make sure you don't eat lots of fibre before hand!! Donation by Scott Booth 20/08/08	£10.00 + £2.82 Gift Aid
	Hope you do better then your scuba diving Donation by John Vernon 18/08/08	£10.00 + £2.82 Gift Aid
	Crazy!! But we both kow its not the first time you have been a dare devil!! Good Luck Donation by Jackie Wilshaw 18/08/08	£10.00 + £2.82 Gift Aid
	Great cause - bonkers stunt! All the best with it mate Donation by Paul Melsom 12/08/08	£20.00 + £5.64 Gift Aid
	Totally crazy but all for a good cause so the best of luck mate! Donation by Andy Maddox 06/08/08	£10.00 + £2.82 Gift Aid
	I hear the standard of checking of parachute packs is quite good these days and failures are rare(ish) so you should be fine! Donation by Jason Rowley 04/08/08	£10.00 + £2.82 Gift Aid
	As a P.B.C. sufferer, I send my heartfelt thanks for raising awareness and funds on our behalf, God Bless you and take care. (Helens Mom). Donation by Brenda Whitmore 03/08/08	£10.00 + £2.82 Gift Aid
	Take a can of Red Bull; it gives you wings! Donation by Roger Taylor 03/08/08	£15.00 + £4.23 Gift Aid
	Rather you than me John, great cause though Donation by Malcolm Sargent 01/08/08	£25.00 + £7.05 Gift Aid

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* Total raised online:	£910.00
Offline donations:	£343.50
Gift Aid plus supplement:	£256.67

* Charities pay a small fee for our service.
Find out how much it is and what we do for it.