DebRA . is fundraising for DebRA

The Boy Whose Skin Fell Off

In memory of:
Jonny Kennedy

Jonny Kennedy

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Raising money for

DebRA

Charity Registration No. 1084958

EB - Epidermolysis Bullosa - is a genetic condition where the skin breaks at the slightest touch, causing painful, open blisters and wounds. EB can mean a life of extreme pain, disability and, at its worst it is fatal in infancy. People with severe EB are likely to contract a fatal skin cancer. DebRA provides specialist EB nursing, funds extensive medical research and provides counselling, welfare, respite and advocacy.

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DebRA .

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31/01/2009

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Raised so far: £79,012.74

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My story

Jonny agreed to make 'The Boy Whose Skin Fell Off' to make EB more widely known and to raise funds for DebRA, the only charity in the UK that provides specialist nursing and welfare for children and adults living with this painful condition.

DebRA also funds wide ranging international research projects, including EB research in genetics, cancer in EB, wound healing and pain management.

As a result of the documentary over £500,000 has already been raised. DebRA has subsequently been able to embark on a long term research programme and may only be two to three years away from clinical trials into effective treatments.

This is, however, an expensive journey and we very much need your support. Please help us make Jonny's wish come true by making a donation here.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to support DebRA. DebRA will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

Thank you for reading this.

	True inspiration! Donation by Anon 17/01/09	£10.00 + £2.82 Gift Aid
	We've never forgotten you. Keep on laughing Jonny, and make the Angels smile Donation by Claire Dawson 23/12/08	£15.00 + £4.23 Gift Aid
	this programme made me realise how lucky i am but also made me want to help people who suffer from this terrible disease Donation by anon 23/12/08	£100.00 + £28.21 Gift Aid
	Hope your dream comes true for the future Donation by Jayne 22/12/08	£10.00 + £2.82 Gift Aid
	Remarkable person. Brilliant character, determined and warm souled. I wish I could have met him. Best wishes x Donation by Peter Kent 08/12/08	£20.00 + £5.64 Gift Aid
	With hope for the future Donation by Deborah 06/12/08	£10.00 + £2.82 Gift Aid
	I hope you are livening things up up there Donation by Elle 01/12/08	£15.00
	I will never forger the programme and what you said Donation by Alyn 28/11/08	£10.00 + £2.82 Gift Aid
	His legacy will help so many others Donation by John & Fay Inverness 24/11/08	£25.00 + £7.05 Gift Aid
	A truly inspirational man & a real star!!! Donation by Sharoony 04/11/08	£5.00 + £1.41 Gift Aid

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* Total raised online:	£79,012.74
Offline donations:	£0.00
Gift Aid plus supplement:	£16,441.34

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Find out how much it is and what we do for it.