DebRA . is fundraising for DebRA

The Boy Whose Skin Fell Off

In memory of:
Jonny Kennedy

Jonny Kennedy

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Raising money for

DebRA

Charity Registration No. 1084958

EB - Epidermolysis Bullosa - is a genetic condition where the skin breaks at the slightest touch, causing painful, open blisters and wounds. EB can mean a life of extreme pain, disability and, at its worst it is fatal in infancy. People with severe EB are likely to contract a fatal skin cancer. DebRA provides specialist EB nursing, funds extensive medical research and provides counselling, welfare, respite and advocacy.

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DebRA .

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31/01/2009

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Raised so far: £79,012.74

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My story

Jonny agreed to make 'The Boy Whose Skin Fell Off' to make EB more widely known and to raise funds for DebRA, the only charity in the UK that provides specialist nursing and welfare for children and adults living with this painful condition.

DebRA also funds wide ranging international research projects, including EB research in genetics, cancer in EB, wound healing and pain management.

As a result of the documentary over £500,000 has already been raised. DebRA has subsequently been able to embark on a long term research programme and may only be two to three years away from clinical trials into effective treatments.

This is, however, an expensive journey and we very much need your support. Please help us make Jonny's wish come true by making a donation here.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to support DebRA. DebRA will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

Thank you for reading this.

	With love and gratitude. Donation by Simone Graetzer 10/04/08	£20.00
	In memory of a truly great man. Thank you Jonny. Donation by Julie 09/04/08	£25.00 + £7.05 Gift Aid
	Donation by Helena 09/04/08	£30.00
	For making me realise how lucky I am and how strong people can be Donation by Anon 28/03/08	£25.00 + £7.05 Gift Aid
	In memory of a wonderful spirit and soul who gave so much to help others- Jonny Kennedy Donation by Martin 23/03/08	£25.00 + £7.05 Gift Aid
	In memory of Johnny and Mary Hart and for all eb sufferers. xxx Donation by Rae 23/03/08	£50.00
	For Jonny, an inspirational man, and your mam and brother and the rest of the family Donation by Iain 08/03/08	£20.00 + £5.64 Gift Aid
	Have never been so touched by a film, made me cry yet made me smile, what an incredible, lovable per Donation by Nia 07/03/08	£10.00 + £2.82 Gift Aid
	very moving Donation by john 07/03/08	£10.00 + £2.82 Gift Aid
	Inspirational man. Very touching Donation by Melissa Hosier 07/03/08	£10.00 + £2.82 Gift Aid
	I'm sure your rocking with the angels Donation by Colin 07/03/08	£20.00 + £5.64 Gift Aid
	Donation by anon 07/03/08	£15.00 + £4.23 Gift Aid
	You’re a true inspiration Jonny hope this helps. Donation by Marc 06/03/08	£20.00 + £5.64 Gift Aid
	The TV programme was truly wonderful - his family must be really proud of such a great guy. All the best, Jonny. Donation by Christine Selby 06/03/08	£50.00 + £14.10 Gift Aid
	Inspirational & truly humbling programme - again Donation by Andy Kenny 06/03/08	£15.00 + £4.23 Gift Aid
	Such a special, warm and caring person with so much courage. x Donation by Angelina McPherson 06/03/08	£10.00 + £2.82 Gift Aid
	Thank you for sharing your story, your last days and helping raise awareness of this cruel condition Donation by Laura 06/03/08	£20.00 + £5.64 Gift Aid
	Makes me feel daft complaining about a bit of exzema... What an amazing guy. Donation by Phil Craig 06/03/08	£20.00 + £5.64 Gift Aid
	What a legend! A real inspiration. Donation by David Grievson 06/03/08	£25.00 + £7.05 Gift Aid
	What an amazing man Donation by Emily Betteridge 06/03/08	£10.00 + £2.82 Gift Aid
	An inspiration to all Donation by Sophie Jones 06/03/08	£25.00 + £7.05 Gift Aid
	thanks jonny! Donation by derek 06/03/08	£10.00
	Thankfully, he knew the truth behind it all. Fly high, Jonny! Donation by Evangelica 06/03/08	£25.00 + £7.05 Gift Aid
	An inspiring man Donation by Annelies Scott 06/03/08	£10.00 + £2.82 Gift Aid
	Thankyou Jonny, i now have a completely new outlook on life. God Bless you and all those involved in Donation by Jessica 06/03/08	£10.00
	Your life made has made other lives better. Amazing x take care fella Donation by Labassa 06/03/08	£10.00 + £2.82 Gift Aid
	Just seen the docu. What a person!! Was completely moved. Donation by Jo Macleod 05/03/08	£20.00 + £5.64 Gift Aid
	a truly amazing man. Donation by Claire Edwards 05/03/08	£20.00 + £5.64 Gift Aid
	You are an inspiration to all. Your bravery was outstanding. Donation by Zena 05/03/08	£10.00 + £2.82 Gift Aid
	Just watched the documentary. Truely inspirational, brought a tear to my eye. what an amazing man. Donation by sally priest 05/03/08	£10.00 + £2.82 Gift Aid

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* Total raised online:	£79,012.74
Offline donations:	£0.00
Gift Aid plus supplement:	£16,441.34

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