Raised so far: £79,012.74
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My story

 
Jonny agreed to make 'The Boy Whose Skin Fell Off' to make EB more widely known and to raise funds for DebRA, the only charity in the UK that provides specialist nursing and welfare for children and adults living with this painful condition.

DebRA also funds wide ranging international research projects, including EB research in genetics, cancer in EB, wound healing and pain management.

As a result of the documentary over £500,000 has already been raised. DebRA has subsequently been able to embark on a long term research programme and may only be two to three years away from clinical trials into effective treatments.

This is, however, an expensive journey and we very much need your support. Please help us make Jonny's wish come true by making a donation here.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to support DebRA. DebRA will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

Thank you for reading this.

Let's make Jonny's dream come true and make this condition a thing of the past. Donation by Kitten 31/01/08  

£20.00

What a touching story. It touched my heart like non other! Donation by Freddie 31/01/08  

£20.00

You made my heart break Godbless Donation by Julia 30/01/08  

£20.00 + £5.64 Gift Aid

I have been meaning to do this since I saw the programme over 3 years ago - I am sorry for the delay Donation by Anon 29/01/08  

£50.00

Inspirational person! He left an indelible mark on this world, that will never be forgotten. Donation by Dave O'Hare 27/01/08  

£20.00 + £5.64 Gift Aid

TRULY INSPIRATIONAL TO OUR PHYSICS DEPT. OUR LADS RAISED THIS IN MEMORY OF A TOP GUY. DON'T STOP NOW Donation by BISHOP VESEY'S GRAMMAR SCHOOL BIRMINGHA 10/01/08  

£639.80

what an amazing and truly inspirational person Donation by gary and deb 05/01/08  

£20.00 + £5.64 Gift Aid

I could not forget such an inspirational story about such a brave man. Donation by Laura M 31/12/07  

£150.00

Donation by Ian Wilson 24/12/07  

£300.00 + £84.62 Gift Aid

Donation by Fiona 22/12/07  

£10.00 + £2.82 Gift Aid

Donation by Ian Thompson 18/12/07  

£20.00 + £5.64 Gift Aid

Donation by Sion 17/12/07  

£20.00 + £5.64 Gift Aid

A truly inspirational man. Donation by Jodieanna 14/12/07  

£5.00 + £1.41 Gift Aid

Bless you Donation by oconnormat 14/12/07  

£50.00

Donation by tubbyt 14/12/07  

£50.00 + £14.10 Gift Aid

Danny in memory ofJohnny Donation by crewstr@hotmail.com 13/12/07  

£20.00

Donation by Marie Bacon 12/12/07  

£20.00 + £5.64 Gift Aid

Donation by scott 01/12/07  

£20.00 + £5.64 Gift Aid

A truly amazing man. So brave. Donation by Leanne R 30/11/07  

£10.00 + £2.82 Gift Aid

An Inspiration Donation by Mrs John 28/11/07  

£20.00 + £5.64 Gift Aid

As others have said - An inspiration to us all. God Bless x Donation by sally 14/11/07  

£10.00 + £2.82 Gift Aid

You will always be an inspiration and live forever in our hearts and minds Donation by Rob Murray 12/11/07  

£25.00 + £7.05 Gift Aid

Donation by Martin F 10/11/07  

£30.00 + £8.46 Gift Aid

Donation by louise 09/11/07  

£10.00 + £2.82 Gift Aid

meek are the lowly Donation by Donna Cowley 08/11/07  

£10.00 + £2.82 Gift Aid

Donation by Sean W 06/11/07  

£10.00 + £2.82 Gift Aid

Donation by gallowgate 03/11/07  

£20.00 + £5.64 Gift Aid

Donation by michelle Fell 02/11/07  

£20.00 + £5.64 Gift Aid

Donation by The Wigman 01/11/07  

£5.00

in lieu of leaving drinks inspired by jonny a brave man with a great sense of humour Donation by mary mcgrath 30/10/07  

£75.00 + £21.15 Gift Aid
Donate now
 
* Total raised online: £79,012.74
  Offline donations: £0.00
  Gift Aid plus supplement: £16,441.34

* Charities pay a small fee for our service.
Find out how much it is and what we do for it.