DebRA . is fundraising for DebRA

The Boy Whose Skin Fell Off

In memory of:
Jonny Kennedy

Jonny Kennedy

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Raising money for

DebRA

Charity Registration No. 1084958

EB - Epidermolysis Bullosa - is a genetic condition where the skin breaks at the slightest touch, causing painful, open blisters and wounds. EB can mean a life of extreme pain, disability and, at its worst it is fatal in infancy. People with severe EB are likely to contract a fatal skin cancer. DebRA provides specialist EB nursing, funds extensive medical research and provides counselling, welfare, respite and advocacy.

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DebRA .

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31/01/2009

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Raised so far: £79,012.74

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My story

Jonny agreed to make 'The Boy Whose Skin Fell Off' to make EB more widely known and to raise funds for DebRA, the only charity in the UK that provides specialist nursing and welfare for children and adults living with this painful condition.

DebRA also funds wide ranging international research projects, including EB research in genetics, cancer in EB, wound healing and pain management.

As a result of the documentary over £500,000 has already been raised. DebRA has subsequently been able to embark on a long term research programme and may only be two to three years away from clinical trials into effective treatments.

This is, however, an expensive journey and we very much need your support. Please help us make Jonny's wish come true by making a donation here.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to support DebRA. DebRA will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

Thank you for reading this.

	Hope I end up free falling from clouds with Jonny - A real hero who won't be forgotton. Donation by the turners 29/10/07	£20.00 + £5.64 Gift Aid
	Beautiful spirit and the face of an Angel x Donation by Beck 14/10/07	£10.00 + £2.82 Gift Aid
	Donation by Katie Thomson 09/10/07	£10.00
	Donation by Rachel L 03/09/07	£20.00 + £5.64 Gift Aid
	We will never forget Jonny and will continue to support DebRA Donation by chris & sharon 01/09/07	£20.00 + £5.64 Gift Aid
	you made a difference! Donation by Chris 23/08/07	£15.00 + £4.23 Gift Aid
	Hope this helps for a truely inspriring cause xx Donation by Debbie Goodman 17/08/07	£5.00 + £1.41 Gift Aid
	You were and are an inspiration to us all xx Donation by Lynne Carr 08/08/07	£50.00
	To Johhny, who was a strong & brave man. May all his hard work make the path easier for others. x x Donation by Mrs_R_ 04/08/07	£20.00 + £5.64 Gift Aid
	Wicked sense of humour - so inspiring Donation by Merlin 03/08/07	£10.00
	What a guy! small amount, if only everyone gave just a LITTLE. peace. Donation by phil.cribb 01/08/07	£20.00 + £5.64 Gift Aid
	An angel sent from heaven to teach us courage, conviction and grace. Donation by Jenny C 01/08/07	£100.00 + £28.21 Gift Aid
	A true inspiration Donation by natalie 31/07/07	£15.00 + £4.23 Gift Aid
	Hope this small amount can help in some way xxx Donation by Vikki L Davies & Chris Whiteford 31/07/07	£10.00 + £2.82 Gift Aid
	Thanks Johnny for your showing Courage, Humor and the Meaning of life Donation by Felix 31/07/07	£10.00
	I've heard that people grow to match the task set before them. Now I know it's true Donation by Kim Fris Pedersen 30/07/07	£10.00
	Dont stop me now! So so inspirational Johnny Donation by Karl Jensen 30/07/07	£10.00
	I don't know what to say, hopefully the tears in my eyes will say it all... Donation by Simon Sørensen 30/07/07	£5.00
	Donation by Wayne Mardle 30/07/07	£20.00 + £5.64 Gift Aid
	A remarkable person. Jonny you deserve your reward in heaven now. Well done. Rest in Peace Donation by Aidan 30/07/07	£2.00 + £0.56 Gift Aid
	Donation by charlotte cronin 30/07/07	£20.00 + £5.64 Gift Aid
	A lovely man who was an inspiration to me and my children Donation by Bev 30/07/07	£10.00
	An inspiration to us all!!! Most of us don't know how lucky we are. Donation by Lindsey 30/07/07	£20.00 + £5.64 Gift Aid
	Puts everything into perspective. Donation by Mark 30/07/07	£20.00 + £5.64 Gift Aid
	Watching 'the boy who's skin fell off' left me feeling very humble. Johnny was amazing. Donation by anne gardner 30/07/07	£50.00 + £14.10 Gift Aid
	I laughed, I cried.What an amazing person. Donation by lynn 29/07/07	£20.00
	truely humbling Donation by ana & yvon Tsan 29/07/07	£30.00
	You made me laugh and cry - You are a true inspiration. Life really is for living! Donation by Jennifer 28/07/07	£20.00
	Johnny you are an inspiration to us all Donation by Debra 28/07/07	£10.00 + £2.82 Gift Aid
	Watched Jonny's programme last night, he was so brave and it really opened my eyes. Donation by Rachel Humphreys 28/07/07	£30.00 + £8.46 Gift Aid

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* Total raised online:	£79,012.74
Offline donations:	£0.00
Gift Aid plus supplement:	£16,441.34

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Find out how much it is and what we do for it.