Raised so far: £79,012.74
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My story

 
Jonny agreed to make 'The Boy Whose Skin Fell Off' to make EB more widely known and to raise funds for DebRA, the only charity in the UK that provides specialist nursing and welfare for children and adults living with this painful condition.

DebRA also funds wide ranging international research projects, including EB research in genetics, cancer in EB, wound healing and pain management.

As a result of the documentary over £500,000 has already been raised. DebRA has subsequently been able to embark on a long term research programme and may only be two to three years away from clinical trials into effective treatments.

This is, however, an expensive journey and we very much need your support. Please help us make Jonny's wish come true by making a donation here.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to support DebRA. DebRA will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.

Thank you for reading this.

Donation by me 12/02/07  

£20.00 + £5.64 Gift Aid

Donation by Paul Senior 20/01/07  

£5.00 + £1.41 Gift Aid

Donation by anonymous 18/01/07  

£15.00 + £4.23 Gift Aid

Donation by Emily82 07/01/07  

£15.00 + £4.23 Gift Aid

Donation by anonymous 26/12/06  

£10.00 + £2.82 Gift Aid

Merry Christmas Donation by Kate 22/12/06  

£15.00 + £4.23 Gift Aid

Donation by johng 19/12/06  

£10.00 + £2.82 Gift Aid

johnny you were an inspiration Donation by david tromans 17/12/06  

£20.00 + £5.64 Gift Aid

Wonderful boy! Magnificent man. Donation by denx 12/12/06  

£10.00

Donation by Gavin 10/12/06  

£100.00

Truely an amazing person. If only everyone could be a little more like him. Donation by Michael Bisbing 09/12/06  

£20.00

Johnny did his part very well. Donation by Jennifer 09/12/06  

£50.00

Donation by Executor2001 22/11/06  

£10.00

Donation by anonymous 18/11/06  

£5.00 + £1.41 Gift Aid

In memory of a brave man, with hope for all those who suffer Donation by Anita 15/11/06  

£20.00

Imagine a world full of people who thought like Jonny.Godspeed Jonny. Donation by Kevin from Canada 05/11/06  

£20.00

Jonny, thank you for the wake-up call. Donation by Bryan from US 01/11/06  

£30.00

What a remarkable story told by a brave, charming, witty, honest, inspiring person. Thanks, Jonny. Donation by Beth 27/10/06  

£20.00

Jonny, you are such an inspiration. God Bless you. I will never forget you. Donation by Stephanie Peduto 27/10/06  

£10.00

I admire Johnny for his courage and strength. Thank you. Donation by Shizuka 27/10/06  

£20.00

God Bless You Jonny Donation by Terese 27/10/06  

£100.00

Jonny was a tough, wise soul with a fantastic wit who gave us perspective and hope. Rest in peace. Donation by Kate McCool from the U.S. 27/10/06  

£10.00

Donation by Kristen 26/10/06  

£10.00

Donation by Daniel Dumont 26/10/06  

£10.00

What a moving and ispiring story. There should be more people with Jonny's outlook on life. Donation by LeeAnn US 26/10/06  

£25.00

Jonny-your story has touch me in ways i can never express. I will never-ever forget you. Donation by Patricia from the US 26/10/06  

£100.00

Donation by ruby blanchette 26/10/06  

£100.00

Moved and humbled by Jonny's courage and attitude. Donation by Matt 26/10/06  

£20.00

Thank you Jonny. When I picture angels with harps, I'll picture you trying to shake things up a bit. Donation by Izzie 26/10/06  

£20.00

i was very inspired by johnny's courage, and very touched Donation by beverly stephens 26/10/06  

£20.00 + £5.64 Gift Aid
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* Total raised online: £79,012.74
  Offline donations: £0.00
  Gift Aid plus supplement: £16,441.34

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Find out how much it is and what we do for it.