Jonny agreed to make 'The Boy Whose Skin Fell Off' to make EB more widely known and to raise funds for DebRA, the only charity in the UK that provides specialist nursing and welfare for children and adults living with this painful condition.
DebRA also funds wide ranging international research projects, including EB research in genetics, cancer in EB, wound healing and pain management.
As a result of the documentary over £500,000 has already been raised. DebRA has subsequently been able to embark on a long term research programme and may only be two to three years away from clinical trials into effective treatments.
This is, however, an expensive journey and we very much need your support. Please help us make Jonny's wish come true by making a donation here.
Donating through this site is simple, fast and totally secure. It is also the most efficient way to support DebRA. DebRA will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.
Thank you for reading this.
Raised so far: £79,012.74
Donate now
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True inspiration! Donation by Anon on 17/01/09 |
£10.00 + £2.82 Gift Aid |
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We've never forgotten you. Keep on laughing Jonny, and make the Angels smile Donation by Claire Dawson on 23/12/08 |
£15.00 + £4.23 Gift Aid |
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this programme made me realise how lucky i am but also made me want to help people who suffer from this terrible disease Donation by anon on 23/12/08 |
£100.00 + £28.21 Gift Aid |
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Hope your dream comes true for the future Donation by Jayne on 22/12/08 |
£10.00 + £2.82 Gift Aid |
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Remarkable person. Brilliant character, determined and warm souled. I wish I could have met him. Best wishes x Donation by Peter Kent on 08/12/08 |
£20.00 + £5.64 Gift Aid |
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With hope for the future Donation by Deborah on 06/12/08 |
£10.00 + £2.82 Gift Aid |
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I hope you are livening things up up there Donation by Elle on 01/12/08 |
£15.00 |
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I will never forger the programme and what you said Donation by Alyn on 28/11/08 |
£10.00 + £2.82 Gift Aid |
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His legacy will help so many others Donation by John & Fay Inverness on 24/11/08 |
£25.00 + £7.05 Gift Aid |
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A truly inspirational man & a real star!!! Donation by Sharoony on 04/11/08 |
£5.00 + £1.41 Gift Aid |
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I never forgot the programme and whenever I hear Queen playing I immediately think of Jonny. - an amazing man. Laughter and tears. Donation by Janette on 01/11/08 |
£25.00 + £7.05 Gift Aid |
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Thank you for being such an inspiration. Don`t stop me now ! Glide on forever Jonny, love ya. Donation by Carole Smith. Rugby. on 05/10/08 |
£10.00 + £2.82 Gift Aid |
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God bless you Donation by Annonymous on 26/09/08 |
£100.00 + £28.21 Gift Aid |
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In memoriam Donation by Pilar (from Spain) on 22/09/08 |
£10.00 |
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My support for a life free of pain Donation by Carme on 20/09/08 |
£80.00 |
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What a great man... 100% Strenght Donation by From Catalunya on 20/09/08 |
£20.00 |
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What a brave man, he made me feel so humble Donation by Sylvia on 20/09/08 |
£10.00 |
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Nothing's gonna stop you now, Jonny Donation by From Spain on 20/09/08 |
£100.00 |
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Truly an inspiration. God bless Jonny and all his family Donation by Anonymous on 07/09/08 |
£10.00 |
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Whenever i hear the Queen song I smile and think of Johhny, he was an inspiration x Donation by michelle stewart on 23/08/08 |
£20.00 + £5.64 Gift Aid |
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Jonny was an awesome human being, he made me want to make a difference so I did a raffle at school a Donation by Libby Smith on 30/06/08 |
£25.00 |
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Brave man. Donation by Antony on 30/06/08 |
£10.00 |
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I never cherished the life I lived, until I saw Jonny smile. Thank you. Donation by Jade Daniels on 23/06/08 |
£10.00 |
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Donation by rosanna on 20/06/08 |
£10.00 + £2.82 Gift Aid |
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Lots of love, champion! xxx Donation by Tim Peacock on 10/06/08 |
£50.00 |
| * Total raised online: | £79,012.74 |
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| Offline donations: | £0.00 |
| Mobile donations: | £0.00 |
| Total Raised: | £79,012.74 |
| Gift Aid plus supplement: | £16,441.34 |
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